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I see a lot of old posts of others who were diagnosed with thyroid Cancer...I was just wondering if anyone was pregnant during their diagnosis? I found out today that I have thyroid cancer and I'm almost 11 weeks pregnant...I'd really love to talk to others who have had thyroid cancer, so I can know what to expect...Thank you!
I'm so sorry to hear about your news. I heard the same news 2 years ago when I was pregnant with our only child. My story is probably a worst case scenerio because it was a recurrance that they found when I was pregnant. I was 25 and 9 years in remission, or so I thought. Doctors said the cancer was never in remission, instead it was growing for 9 years. Let me just start by saying that cancer is a disease that multiplies and divides quickly. Unfortunatly, pregnancy cells act the same way. Multiplying and dividing is where you will be untill docs take action. They pretty much can only do surgery, because you don't want to kill your unborn child with CTs or PET Scans of radiation. Only MRIs and only of the head and neck. Now if this is your first time and it's only in your thyroid bed, it's probably not that bad. Stage 1 and 2 are easily curable even if your pregnant. I'm stage 4 because it spread to my lungs, mediastinum and upper respiratory. You will have to wait untill after the baby is born to have I-131, which is radio-active iodine. You will probably be very tired and it will increase untill the cancer is under control and after the baby is born. When you get up there in weeks, remember to move a lot. if not, you will have problems moving your muscles later. Plus, eat plenty of fiber so you can keep your gallbladder for life and drink lots of water. There are not too many people in the world that have had to face life growing inside of you while you face death on the other end. It's harsh. Don't let it get you. You have to be strong for the child inside you. Consentrate on it and not the cancer. All I can say is that you will be in my prayers as I know God has a purpose for you and your child. If you need anything, please feel free to write me anytime. When you feel like it's not fair and why did it have to happen now, just put on some Bob Marley or your favorite music. "and Don't worry about a thing, cause every little thing is gonna be alright." God bless you, Ilisa 11 1/2 year Thyroid Cancer Thriver.
I am curious how you are doing now that a couple of months have gone by since your initial post. I was diagnosed with thyroid cancer 2 weeks ago and I underwent a total thyroidectomy this past week and I am currently 26 weeks pregnant with our second little boy. What a whirlwind the past few weeks have been! First, just hearing the word 'cancer', second, preparing for surgery while being pregnant was scary (but we made it!!!), and now onto recovery and preparing for this little boy to arrive in December....
I am curious how you are doing; what the doctors have decided to do, what your course of treatment will be, etc. It is such a scary thing, yet I am considering myself lucky that it doesn't seem the cancer has spread.
We are strong mommies!!!
I went through the surgery and then found out I was pregnant so we had to be really careful on the treatment, as well as monitoring the medication. Pm me if you would like to chat. you are in my prayers!
Thank you all for your replies...I forgot about my thread here...Unfortunately exactly 2 weeks after my surgery I went to my regular OB check up and my baby girl no longer had a heartbeat...I'm thinking she passed away sometime in the week after I had surgery...I haven't heard anything about the autopsy yet, but I know it had been a week or more when she was born....It's been a very hard month (One month exactly today)....I had a hard recovery, worse than I thought...The first week was very painful...Then finding out my little girl was gone and giving birth to her a week later...I now am faced with getting RAI done or waiting and having another baby...I've longed for this baby girl for so long and even though I know she won't ever be replaceable I still very much want a baby...I'm going to be seeing some specialists and probably getting a full body scan sometime in Jan (I think) and we are going to take it from there...My cancer was starting to spread to my blood vessels and it was 2.6cm so my doctor isn't sure if I should wait, but they feel they owe me more than just one opinion...I hope all the rest of you are doing well!
I'd really love it if you all would post an update??? I see some were new to JM, but I think of you all a lot.
My short update...I got pregnant again, but lost the baby at 15 weeks...I had a neck ultrasound the day before I found out the baby was gone, and it showed no cancer!!!! I still have peices of thyroid in my neck, but they looked good for now....I'm having a lot of problems with my health from this miscarriage and have had to have 2 D&C's and 2 blood transfusions last weekend....I just want to get healthy and try again for a baby...Since my neck ultrasound looked perfect i'm going to put off the radio active iodine...I haven 't told my thyroid doc yet, but oh well...I feel resentful and feel like I was pushed into surgery when it probably could of waited till after the baby was born and even though they say my surgery had nothing to do with her death, I can't help but wonder "what if"...My cancer had started to spread into the blood vessels, but I just found out was just the blood vessels inside my thyroid, and not outside of it...I'm thinking that waiting 4 months after 5 years of having it, that it would of been fine....I think as long as we monitor it with ultrasound and blood tests that it will be fine till I can have another baby...This last year has been such a rollar coaster and i'm so ready to start having good things happen...I really hope some of you read this and let me know how you all are doing