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I had a really bad case of bells palsy 2 years ago accompanied with severe headaches. Well 6 days ago I got a severe headache, and what do ya know, 2 days ago hit with another bout of bells palsy. I still have a slight headache but it's not too extreme. This time the bells palsy isn't so bad but I hope it doesn't get worse. Last time I had to tape my eye shut and wear an eye patch because I couldn't close my eye and risked blindness from my eye being dry or becoming scratched. This time I can blink my eye and my mouth isn't as droopy, but it's still not great.
I wouldn't be so worried about it but I start school today and will be doing my observation in a high school. I know high schoolers can be mean little crapheads, and not sure if any kid would want to get to me by mentioning my face. I also really would love the headaches to go away. Blah I so hate this crap, my Mom wanted to take me to the ER but I think it's money wasted because all they will probably want to do is do another CT Scan and MRI to make sure it's not a brain tumor (they did this the first time) or a blood clot. I know it's another bout of bells palsy, and having crappy insurance makes me not too keen on the doctor.
Just wanted to complain, blah. Has anyone else here had bells palsy?
I had it about 3 years ago. The lack of information on the subject is very frustrating. I only had it that one time so far and I feel the effects still though it may not look like it to anyone. My face gets tight when I am tired and when I smile too hard my eye shuts but I can speak again and those darn headaches are gone. I am 33 weeks pregnant and call me crazy but i worry if my baby's face is going to be affected. If i had it, will she have it too?
As far as I know bells palsy is NOT hereditary. I could be wrong but I am pretty sure it isn't "in the family" or anything like that, it's more of you have it or don't. And yeah the research is really slim... the fact that it can be a virus or damage to the nerve, or just "Oh yeah hey you have it, not sure why, just deal with it!" is aggravating. I want to know WHY, but there are no answers.
My family saw me today and are worried because I think Im making it out better than it really is, but I guess Im just being optimistic because I don't want to think about the "how long will this crap last THIS time!" ya know? I wish there was a medicine for it, there are antivirals and pain meds but nothing to just stop it right away. And these headaches, ugh, it's taking so much out of me. I am a baby with head and tooth pain, anything else and I can deal. I broke my arm and it barely fazed me, but head pain renders me useless. And I am soooo tiiiiired. I only had one class today and came home, put down my bags and went to sleep because I was just exhausted.
And I hear ya on feeling the effects but no one else seeing it. I can tell when I am having a bad day or am really tired because of the way my face feels. Sometimes people will tell because I get a very lazy eye, but I feel it more often than what can be seen.
It's just this time I had the headaches, it was persistant and I thought "I bet I am getting another episode" and sure enough I did. I get bad headaches all the time but there is something different about these kinds and I can tell the difference of a regular headache and the headaches that go with bells palsy. Sucks that I could sense it was coming on but there is no medicine to stop it then.
Laaaaaame. At least my professors are SUPER understanding and knew what it was and said just to keep on top of my work and if I need to miss class it is okay. I don't want to miss class but it's good to not feel like I have to go when feeling like crap.
Well I went to the doctor today... got put on some heavy duty meds. I had facial numbness with the first episode which I found out should NOT have been linked to bells palsy because it is different nerves, meaning facial numbness is a different effected nerve than what nerve bells palsy effects. So that was weird. But that explains why I have no numbness this time.
Bad news is that I always had residual effects from the first episode (lazy eye, my eye gets very droopy when Im tired, my mouth droops when Im stressed) and he said if this is the second episode, and had residual effects before, I may not recover as well. I do need to be prepared for that. He said it is very rare to have those residual effects for so long and have a second episode.... so I do have some statistics against me.
But I am hoping these meds work, I have a checkup in a week, so I really hope I have some improvement.
Well the doctor put me on another round of steroids because the headaches got better, but then worse again. He wanted to see if it was from me tapering off the steroids. No real improvement in my eye but I can move my mouth around more, but not too much.
He is concerned about the headaches, so I have 2 weeks of meds and then go back. If there is still no improvement or headaches then he will want me to see a neurologist and see if there is any other issues that may be causing this. Good news is eye looks okay and he doesn't see any damage to it or drying out, so thats good!