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how does it effect you? my family is in its own catogory. was diagnosed at 9. i've had it since borth, my brother had a skin graph done and we all matched it. i'm one of 5 children that all have it. i have a milder case as well as my son. I would say my brothewrs& sister took it the hardest. My older sister, she's half sis, i don't know how her case is, b/c we don't know each other well and she doesn't want to talk about it. i leave well alone with her. the rest of us siblings talk about it and we help with advice on what works for us. maybe they should try, sometimes it helps other times it doesnt. i don't work. im a stay at home mom.