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I am Lydia and my hubby is James. I have Hydrocephalus/Dandy Walker Syndrome and 2 VP shunts. We are from Daytona Beach, FL. We got married on 4/22/2004. We have a 10 month old healthy, daughter named Gloria. She will be 1 on Oct 28th 2005. My hubby and I are college students, videographers. We go to DBCC in town and getting a degree in Television. We also like Christianity, Star Trek, Cats. My hubby is a musician and I like to scrapbook.
Welcome and I am glad you found this board. I hope you find the support you want here. There are great gals here even though we might be a small group. I am looking forward to getting to know you.
My threatened to come at 11 wks early, but the docs told my mom to be on bedrest for 6 wks. Then my mom had me by c-section 5 wks till her due date. The doctors check checking on me and my head meausurements went of the chart... so they sent me to Shands Hospital in Gainesville, FL because they diagnosised me with Hydrocephalus/Dandy Walker Syndrome at 4 months old. They shunted me on my right side first with a VP shunt from the 3 ventrical, but 3 months later I got a staph infection and they replaced it with one on my left side.
About 11 years later during Spring Break in 5th grade, I woke up to a really bad headache and was crying. We went to Shands to have surgery to place another VP shunt in the syst directly. Ever since then I have graduated on time, got married and had a baby. Also, I got tested for any learning disabilities too. First I got tested twice in 2002 and I have Nonverbal Learning Disability (NLD).
If anyone else has any more questions, just PM me.