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  #21  
February 1st, 2007, 01:35 PM
Marieke's Avatar Mommy to an angel
Join Date: Jun 2006
Location: Canada
Posts: 4,420
Hello everyone. My name is Marie and I'm 21 years old. I have a disability, it's not as important as some of you, but it is a disability although it's not hard to cope with. I was born with 100% hearing loss in my right ear. Well the doctors don't know if I was born with it or if it developped itself over the years, but they only found out when I was 5. Here's a bit of my story:

I was often babysitten by my grandmother. As usual, my mother calls to know how things are doing. I get to the phone, obviously, like every normal hearing people my grandmother gives me the phone on the right side. But since I can't hear on that side, I switch it to the left... To me, it was 'normal', I never talked about it... But my grandmother thought it was odd I always switched it to the other ear... One day, my mom and my grandmother did a test: my grandmother called and my mom told me to keep the phone on my right ear, I said: 'but what's the point? I can't hear on that side!!'. My mom was like: . So she took me to a doctor, I underwent audio tests and indeed I was completely deaf on the right side But I grew up like that, to me it's never been an issue. I don't know what it is to hear with two ears. In school, the teachers had to place my desk on the right side so that the sounds went directly into my left ear, so I could hear better. I've never seen it as a big disability, never had issues. Until last year when I worked at Subway... They have this big screen in front of us and it was hard to hear the people and I was slow because I always had to make customers repeat. With all the noise in the background, I couldn't hear anything So I quit the job. The only disadvantage to being deaf on one side is that sounds go into the same ear so when there's noise, no matter how soft the noise is, I won't be able to hear anyone that talks to me, all I can hear is that noise. Like when I watch tv, I can't hear anyone talking.

Well that's pretty much it.

I have a question though. My parents aren't deaf or anything. The fact that my right ear is 'dead', does that mean that one or both parents has the deaf gene? Is it possible I have it? Could my children be deaf?
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  #22  
May 11th, 2007, 03:49 PM
*Fiona*
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Posts: n/a
Quote:
I have a question though. My parents aren't deaf or anything. The fact that my right ear is 'dead', does that mean that one or both parents has the deaf gene? Is it possible I have it? Could my children be deaf?[/b]
I can't answer your question Marie, but I can comment... I was deaf until I was 5 I had my adenoids removed.

Like you my grandfather noticed it, mum thought I was stubborn and had selective hearing I'd taught myself to lip read. The only memory I have of it all is coming home from the hospital after the op, dad was driving the car whilst I was crying my eyes out because the car was so loud!

Maybe someone can answer your Q.
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  #23  
June 6th, 2007, 03:17 PM
Regular
Join Date: Jun 2007
Location: Toledo, OH
Posts: 94
Send a message via Yahoo to afullmargin
New on board. Most of you have probably seen me elsewhere...

I've been removed from work by my doctor as of 1/06 due to deterioration of my spine. I've got several maligned discs and advanced deterioration due to being a big woman (5'11" and 400lbs) and not having the best luck with accidents.

After being pregnant and having my son it got to the point where I can't walk or be on my feet more than 10-15 mins at time without the pain becoming unbearable. Bending, lifting and carrying has been difficult and I avoid it when I can (I will always pick up my son, I just can't help it even if it hurts).

At the moment I'm still pending on my claim for SSI assistance. Things physically aren't too difficult, I've adjusted as much as I can to make it so I can still do things like I used to - I just have to bear in mind that on a good day if I'm not careful enough the next day it'll horrible. Medication and physical therapy is a godsend.

So, erm. Yeah. That's me! More or less single mom with back pain issues.
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  #24  
August 4th, 2007, 02:53 PM
Rachel81's Avatar Mega Super Mommy
Join Date: Jan 2007
Location: Michigan
Posts: 3,966
Hello all! Just wanted to also say that your stories make me feel better about mine.. You tend to feel sorry for yourself and I see that if you guys can do it so can I! Mine isn't close to yours.. but I had back surgery when I was 6 weeks pregnant with my now 16 month old son. The herniation was between the 4th and 5th L. It was the worse herniation that they had ever seen at the hospital. I was admitted the same day that I had the MRI. It took the whole 6 weeks I was pregnant to convince them to give me a MRI. They kept telling me it was pregnancy pain. I couldn't even walk, get out of bed or pee without screaming. The only relief I could get was laying on my right leg. Anyways after I had the surgery I was basically on bed rest because of it and on top of that I was pregnant. I ended up gaining 60lbs from my pregnancy. After I gave birth to my son my back problems flared up again. I have been in physical therapy since December and to a pain management specialist for steroid shots in my back. Now that have found out that I have 4 new herniations... One in the same darn spot that I had the surgery and 2 in the S1 area. Also my pelvis seems to be tilted. When I walk I favor one side and it throws my pelvis/hips off. Each day when I go into physical therapy (2 times a week) the therapist has to pop my leg out. I've been on and off of percoset and muscle relaxers since the surgery in sept 2005 also. Of course it's hard to take care of my son.. and on top of that my husband got deployed for the second time last October and is still gone. He feels helpless for me and I feel so bad for him. I live with my dad right now because some days I can't even pick my son up! For you girls that do it on your own I praise you! It sure isn't easy! Thanks for listening and stay strong girls!
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  #25  
August 10th, 2008, 10:11 AM
Regular
Join Date: Aug 2008
Posts: 90
Hello!

So, I am Bree. I am new to the entire board, and just wandering around finding places to fit in.

My disability is from being a victim of drunk driving.
My legs were the point of interest.

My legs hurt me more and more every day due to the injuries to them, bad knees, bad circulation, just bad everything about them. This does affect me in my job, and being able to hold specific jobs, climbing stairs, or just plain being on my legs for long amounts of time.
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  #26  
January 17th, 2009, 03:55 PM
Member
Join Date: Jan 2009
Location: So. Illinios
Posts: 27
Send a message via Yahoo to angellfire2973
Hello, I am new here and was hesitant on talking,lol. I am 35yrs. old and have CMT "Charot-MarieTooth" type 1-a,, a form of muscular dystrophy. I was born with it but wasnt diagonsed until after the birth of my oldest when I was 19. I couldnt understand how I was in a wheelchair for about 2mnts. afterwards. Once I regained my walking,,it hasnt been the same. I went to a specialist and told them my fam. hist. and had a few different test run on me. I found out about 2wks later when I got my results. My oldest, Brittiany" is a carrier,, my middle, Damein, was diagonsed at 5 yrs. old,,,,my youngest hasnt been tested yet, but she is showing some traits, her test will be this summer.

I now have special shoes, because my toes are drawing up and the pressure of walking hurts, the shoes have helped alot. My strength isnt the best and count out heavy lifting. My dh is the best ,, he helps me alot,lol. I have good days where if someone was to look at me,, they wouldnt even know what I have. On my bad days I dont usually leave the house,lol, I have a limp or an odd gait, but when it hurts it hurts. My biggest fears come in the winter,,with the snows and ice. Anyway I cant wait to meet others who know what I am dealing with and share our experiences.


Niki
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  #27  
January 22nd, 2009, 08:54 PM
anjelt's Avatar Mega Super Mommy
Join Date: Jun 2008
Location: Minnesota
Posts: 1,299
Hi my name is Angel and I am hearing impaired. My hearing started going bad when I was little. My aunt always says you could talk behind me and I would hear you better then standing in front of me. I started reading lips very young and still do to this day. My hearing loss is from chronic ear infections and later on a disease called Cholestetoma (SP). Basically like your skin sheds its outer layers mine does that inside my ears and eats everything inside. My left ear has the three little bones that vibrate that are made out of coral. My left ear no longer has an ear drum. Both ear drums were replaced in 93 and my right ear drum was fully removed in 2007. I wear a hearing aid mostly in my right ear as both are the same level. I have two ear molds so i can wear the hearing aid in both ears. I LOVE my hearing aid.

I can definatley relate to the person who said the challenge of being hearing impaired is when people speak to you and you can hear them and they think you are rude. I work at a gas station and one guy (i have the most trouble hearing male voices) said to me, what do you need a hearing aid?" I told him yes I do but thanks for pointing that out for me!! I am no longer ashamed of being hearing impaired and will tell everyone that needs to know.

I had my daughter in December, 2008, and was determined to have my hearing aid before she was born, i got my hearing aid December 22nd, and Kenna was born December 30th. It is so nice to be able to hear her squeeks and cries now.

Thank you for letting me tell my story and i look forward to getting to know all you fine ladies who are overcoming their challenges of their disabilities.
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  #28  
January 23rd, 2009, 12:07 PM
Max n Meghan's Mom's Avatar Mega Super Mommy
Join Date: Aug 2008
Location: Gainesville, Florida
Posts: 3,607
Welcome!
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  #29  
February 2nd, 2009, 01:13 AM
somedaymommy's Avatar Regular
Join Date: Feb 2009
Location: Minnesota
Posts: 91
Well Im not a mommy yet, so I hope its okay that I am posting in here. But I do have some disablities but admittedly not as bad as most on here.
I have an Immune Defincey called, Hypogammaglobulinenimia, a really long word that basically means that my immune system doesnt make the right stuff to keep me from getting sick. I have to get 10mL shots full on antibodies 5 days out of the week to keep me out of the hospital. I can literally go from having a cold to pnemonia in just a couple days. So I have to be extemely careful about not getting sick. I have some other things that have gone wrong that are caused by the Immune Defincey.
The "worst" being type one diabetes. I was actually resently diagnosed, March of last year. I was very lucky and able to start on pump therapy rather quickly. So things have been going well on that front. Though it has been a very big learning expeirence.
But anyways... Im kind of rambling here. I just wanted to stop in a say hi to everyone and thank you for being inspirations for people like me, so that we know we can be just as good of parents as everyone else, no matter what others say. ^.^
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  #30  
May 16th, 2009, 12:59 PM
Daisyfields's Avatar Platinum Super Mega Mommy
Join Date: Apr 2007
Location: In the enchanted forest
Posts: 5,257
Well.... I was trying to see if I could find a board like this & here it is...

I am Chantelle, I'm not new to JM but new here.

I have been disabled permantely since 2002, but I've been batteling for more time than that.

My first disability is my feet, I have the feet of a 90 year old woman, I can barely walk sometimes & the pain is pretty bad. I have special inserts for my shoes but it doesn't help.

Second disability is my mental health, I've had mental health issues since 1996 when I was diagnosed w/ PTSD, Bi-polar II & severe anxiety disorder. I've been in treatment since 1996 & I continue to battle w/ this daily.

Third, I have Otosclerosis, it's degenerative hearing loss, hereditary, my grandmother has it.With Otosclerosis, not only does it make me hard of hearing, but I have the side effect of tinnitus, which is getting worst every day.

I was recently diagnoses with Osteo & Rheumatoid Arthritis, it's painful. For the past 2 years I have been trying to figure out what was wrong w/ me, the joint pain, the numbness, how the extreme heat & extreme cold or rain makes me so dibilitated that I am not able to walk well. I have a cane that I am forced to use now.

They are still trying to figure out the last piece to my puzzle. I've been fainting here & there, I lose my balance, slow word recall, blurred vision & sometimes lose my color in my eyes. More stuff but that's the just of it. I've been told that they "think" I have MS or Lupus. I have no idea. Most of the time they diagnose MS w/ MRI & or Spinal, well... I have implants in my ears from the Otosclerosis so I cannot have an MRI & I have Scoliosis which rules out the spinal (this was a big issue when I was preggers, I wouldn't be able to have a spinal & GA would have had to be done "IF" I required a c-sec., all my births were v-births, thankfully that didn't come out).

Basically I am a walking disaster, or so I feel. I try to put on a smile & act like I am fine, but inside, I am in pain. I have to take lots of medications to help me "get by" or make my time manageable but it's hard. I have beautiful children & I feel like I can't go out & run or play w/ them. I want to be more active, but I can't.

Sadly, I "used" to be active, dancer, gymnastics, aerobics instructor, well... those days are over.

That's it in a nutshell.

Sorry so long
~C
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