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I was recently diagnosed with desmoid tumors in my abdominal wall, and I just came home from my second surgery to excise the area. If you google it, you will see there is not too much stuff about it, and I am very concerned and worried and I feel so alone and helpless. I know it is partly due to the pain meds, they throw me right into a state of depression and misery, but I can't NOT take them right now at this point.
If anyone knows anyone, or has heard of them, anything...please email me!