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  #1  
June 5th, 2008, 07:48 PM
Misvenus's Avatar Mega Super Mommy
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My daughter is 2 and shes got a few issues going on. When I noticed her eyes a while back she had a slight lazy eye. I took her to the specialist and they told me that she would soon grow out of it. A few days ago I went to see an opthamologist (sp) for her because I noticed it was getting worse. He told me she has double vision and that she will have development issues unless she gets surgery. He called it something but I really can't remember. After he told me she needed surgery I freaked and cried. Every other word was a blurr. I was wondering if any of you ladies know what I am talking about. OH, her eyes are not very strong. They slip "out" every once in a while. Kind of like wall eyed (sorry, thats the only way I could describe it) . Only one at a time though and not too far out. Just enough to scare me. SO, she needs to have her muscles fixed. I have a ton of questions for this doctor on our pre op visit. I was wondering if anyone went through this and how safe it is and how general anestesia will be on a two year old. Any helpful answers would be so greatful. What about vision therapy?

BTW: Im nina, I also have twins. Bot and girl Unfortunately, they tell me that the twins have a 50 50 chance of getting the same issues.
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  #2  
June 7th, 2008, 05:46 PM
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Sounds like she has Strabismus. Amblyopia is a loss of vision and surgery doesn't correct that. They can do surgery for Strabismus to align the eyes so they start working together to create binocular vision, but please get another opinion before doing surgery. You can go to www.aapos.org to find a Pediatric Ophthalmologist in your area. Don't let them scare you into surgery. Make sure it is really needed. Sometimes glasses and patching can do the trick if it is only intermittent. Remember that you are your child's best advocate. There are lots of great mom's on this board that will help. Don't worry because it will be okay.

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  #3  
June 7th, 2008, 07:08 PM
Misvenus's Avatar Mega Super Mommy
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Thank you so much for your comment. I have come to know the different types of treatment for this besides surgery. I personally think that Vision therapy might work better for her. Shes only two and I can't bear to put her through surgery. I have been loosing sleep and panicy almost every night. I can't stand it anymore. SO what I want to do is ask a ton of questions and make sure this is what she needs. I would do anything to prevent her from doing surgery. I don't care if I loose sleep or spend the money for it. Its all worth it in the end. Also, Strabismus is what I remember what it was called it wasnt constant either. Also, she doesn't seem to have much of a problem with grabing things. She is a little clumsy but my motherly instinct sugests that shes fine and doesn't need it.

Thanks So much again for your comment.
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  #4  
June 9th, 2008, 09:55 AM
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I didn't mean for you to think that surgery might not be needed, but just make sure it's the best route for her. If she does need surgery and it isn't done, then she might not achieve binocular vision. But sometimes dr.s want to do it when it might not be the best thing. I would get a 2nd and even a 3rd opinion if needed.

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  #5  
June 12th, 2008, 10:32 AM
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Hi and welcome, i am Jennifer, mommy to Alexis, who was born visually impaired and had to have eye muscle surgery at 4 1/2 for her nystagmus (involuntary eye movements related to her poor vision).

I am surprised that the doc mentioned surgery right away, most usually try patching first to strengthen the eye muscles. I would consider a second opinion and def. make sure it is a pediatric opthalmologist and not a general optho. If you can, find the most highly recommended ped optho in your area and see him/her. The wait may be longer, but I have found that it is def. worth the wait. I am not sure about vision therapy for strabismus. They may recommend excercises to do to help increase eye muscle strength but to have an actual vision teacher come and work with your dd may not happen (at least through early intervention) as there usually has to de a certain percentage of delayed skills. But my dd doesn't have this and we get vision services for other reasons, so that may not be true.

The surgery my dd had was basically the same thing, she had corrective surgery on her eye muscles, strengthening some and loosing others. This was to fix her null point in her nystagmus, hers was 20 degrees to the right so she had to turn her head to get her vision stable. She was 4 1/2 when we did it, and she has a complicated medical problems, and even with all that she pulled through surgery beautifully and we went home the same day. General anesthesia is scary, with some risks, but the percentage is very very small. My dad has been an anesthesiologist for over 25 years, and when we had her surgery done, said yes, there are risks, but the risks are minimal. All that being said, I would try other traditional non0invasive methods first and if after trying those, there are still no improvements, then consider surgery.

HTH.
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  #6  
June 12th, 2008, 04:58 PM
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Thank you ladies so very much for your info and positive imput. I was feeling anxous about a lot of things with her. I have a post op apointment on the 17th. After I talk to him about ths different things she might be able to do then I will see what the best option is.

Her doctor is a ped. optho. Hes one of the best in my area. Also she will be going to the best hospital in VA. I'm just really scared for her. She hasn't a clue but I do tell her everyday that I know she has an issue with her eyes and that mommy is getting it fixed.
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  #7  
June 22nd, 2008, 09:31 AM
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How did the appointment go?

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  #8  
June 24th, 2008, 04:23 PM
Misvenus's Avatar Mega Super Mommy
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I went ahead and posted about her surgery. I will still be going through with the surgery. Hopefully when she gets a bit older and if she needs more help then I will take her through vision therapy. I personally don't think that she has the right attention span for it. Wish us luck!
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  #9  
June 25th, 2008, 08:24 AM
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On a side note about vision services, my dd started her services at 6 months old, and yes she did have a short attention span, but the vision teacher did continously switch her strategy after about 5-10 minutes to keep her engaged. And each skill she worked on required sifferent activities, so it was fairly easy to keep her engage. Also, the sessions are only 30 minutes, so most teachers if they get 15-20 good solid minutes out of the child are very happy. If you have any other questions, please let me know.
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