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  #1  
November 4th, 2009, 07:39 AM
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Hey ladies. I am concerned about my 3 month old baby girl.
She was very late to smile (around 8 weeks) but it was RARE. Like once then nothing for 2 weeks. Now she smiles daily but that wasn't until about 2 weeks ago (she is almost 4 months old) Its still not often at all. Maybe 3-4 times a day if I am lucky. She won't look at people including me. Most of the time when she smiles she turns her head and does it. if you look at her, she will turn away.
Her eyes still cross fairly often but she can straighten them soemtimes. Also concerned that her eyes flicker, like nystagmus.
here is a video (towards the end its noticable more) she is right at 3 months here.
MVI_2144.flv video by Princess-VT - Photobucket

I have not gotten to the doc yet as my husband was laid off and we have no insurance. He has another job now but no insurance. We are stuck in that spot where we make to much for state ran insurance and not enough to buy private. We are hoping to get insurance soon though.

Is it to early to be really concerned? I have a feeling its not.
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  #2  
November 9th, 2009, 08:41 AM
BornAgainRenee's Avatar TTC #6 after 4 losses
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Hi There, first off let me say, she is adorable!! What a beautiful baby!!

I definitely see what your saying. I don't know if its a true nystagmus. I do however see that there are focusing issues.

I know you said that you don't have insurance right now. I also have no idea where you are. If your in the states, look into the state funded medical plan for children. Since you have no insurance you should be able to get both your kids on that with no problem. A good place to start would be your Part B provider in the county your living in. They will have all kinds of resources for you. Possibly even a special school or organization that supports infants through pre-school visually impaired children.

When Daniel was born the Part B organization really was a life saver. I, at first, had a rough time accepting that Daniel was visually impaired. Once he started excelling at the things that he could do and I saw how important getting him involved with vision specialists, my whole attitude has changed. He is an amazing little boy, and I believe a lot of that is because of the support that we got from the get go.

If I can help in anyway please let me know.
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  #3  
November 9th, 2009, 08:55 AM
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thank you for responding!! Our state only has CHIPS, which is medicaid on a sliding scale. So you pay some but not all. Unofrtunately we don't qualify. You have to make just above "poverty" to qualify. DH works a lot so we make too much. Stuck in the middle. Not enough to pay for private insurance and too much for state.
I did make her an appointment for this Wed. to see a pediatric optomatrist. EXPENSIVE!!! EEKS!! they told me 135-185 just for the exam. Not including if he wants to do anything during it. But I will talk to him if he chooses so, maybe they can work with us.

I'm kinda relieved you said it doens't look like true nystagmus, that is some scary stuff there. Of course internet researching itself is scary! lol

Again thanks for responding, I'll update on Wed.

oh and thanks on the baby compliments, can never get enough of those!! lol
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  #4  
November 14th, 2009, 05:09 PM
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I see what you are saying. Her eyes shake a bit. I think it's worth getting checked out. Did you have your appointment yet? First thing I'd suggest is to see a pediatric ophthalmologist which is a medical doctor who can perform surgery on eyes. An optometrist can treat basic eye issues but it not a medical doctor. Second, ask for a discount. If you don't have insurance, see if the doctor can give you a break. Basically, when you have insurance, the doctor agrees to accept a certain rate from the insurance and then writes the rest off. So, a doctor may charge $150 for an exam but has contracted with an insurance company to accept $100. Basically, you are asking for the same type of discount. If you child needs further evaluations or visits to a hospital, etc, ask about charity care. I was working with a patient last week who mentioned she was a charity care case and, believe me, she was getting fabulous care in the hospital. Your baby is beautiful, btw!!!
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  #5  
November 18th, 2009, 06:40 AM
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thanks! We have our appointment today actually. Seems 2 o'clock will never get here! lol
They don't seem to shake quite as bad as they have in the past, but she is often cross eyed, still does not make eye contact and does not seem to track anything but lights. She is 4 months old now. I for sure will talk to them about payment. I am hoping they will work with me.
He is an opthalmologist like you said. He is a the eye doc for the NICU at a hospital too, so he def does babies. lol I had a friend that took her preemie boys to him and she said he was a good doc.
UHG kinda stressed about it and praying its something minor. I know no matter what we will deal some how but yikes!! thaks for your reply, I'll update later!!
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  #6  
November 18th, 2009, 05:07 PM
BornAgainRenee's Avatar TTC #6 after 4 losses
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Looking forward to your update!!
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  #7  
November 18th, 2009, 06:44 PM
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hmm I had it here.. I swear! lol I don't know whwere it went!! (copied from the july pr)

This is on FB but just in case, Avery has congenital cataracts on both eyes. This is what is causing the nystagmus (the eye movement) they are going to do 2 surgeries on her now. most likely 1 next week and one the next week. He is trying to get her in on Friday after Thanksgiving. She will have to wear thick glasses and then after she turns 1 possibly 2 they will put implants in her eyes.
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Last edited by nvr.4.gtn; November 19th, 2009 at 06:21 PM.
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