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rolling up of the eyes and upward stare


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  #1  
November 25th, 2009, 10:23 AM
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Join Date: Nov 2009
Posts: 2
Hello, I am new to this site and was wondering if any other mommy is dealing with the same issues. My son was born 9/15/09 and has had some issues with his eyes rolling up, an upward stare and the positioning of his arms and hands. He has right optic nerve hypoplasia and may or may not see normally out of that eye, but way too early to tell.
We have been to neuro, optho, and ortho (hip click)...we are waiting on genetics tet to come back, 1st 2 hr EEG was normal, 48hrs EEG showed some "spikng" but no seizure activity, MRI was normal. so, the only answer I get is wait, wait, wait and more wait to see how he develops and possibly do another EEG and MRI.

Anyone dealing with something similiar?
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  #2  
November 28th, 2009, 06:01 PM
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Join Date: Oct 2005
Posts: 41,401
Send a message via Yahoo to nvr.4.gtn
sorry I am no help. My daughters eyes did flutter up and down and left and right. They called it wondering nystagmus. Hers was due to congenital cataracts though. When you say optho, do you mean opthomologist? Or optomotrist?
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  #3  
November 30th, 2009, 08:35 AM
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Join Date: Nov 2009
Posts: 2
opthomologist. Caydon will look at me and track things but he does this upward stare/gaze that has us all concrened.
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  #4  
November 30th, 2009, 03:35 PM
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hope its nothing serious.
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  #5  
December 7th, 2009, 07:34 PM
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Join Date: Dec 2009
Posts: 2
I found a website that might help, but thing won't let me post the info because it's a link!
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  #6  
December 7th, 2009, 07:43 PM
Newbie
Join Date: Dec 2009
Posts: 2
I wanted to share this information but don't understand why I can't do it unless I post nine more times!
How frustrating!

anyway,
go to the worldwide web, (if you know what I mean...those three w's in a row)
then a dot
then type in upgaze
and then another dot
and then the first three letters of the word organization

I was watching Mystery Diagnosis tonight and saw a show about a baby who looked up all the time the diagnosis was paroxysmal tonic upgaze
You might research this on the web and see if it matches your little one.
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