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delayed visual maturation(NEW HERE)


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  #21  
September 30th, 2007, 01:49 PM
Regular
Join Date: Sep 2007
Posts: 2
My son was diagnosed with Visual Maturation Delay at 4 mo. He had had heart surgery at 2 months. Normal MRI, although an insult found on his pons, but still told normal result, normal EEg and normal genetics testing. He has torticollis, acid reflux and is delayed gross motor-wise.

I have had such a hard time having patience with not having any other diagnosis, yet doctors, PTs and others all telling me that he has neurological issues! I do believe VMD is a neurological issue. My hope is strengthened just this weekend when my son seems to have switched off his constant fussing and is consistently tracking and smiling! He is 6 1/2 months.

A lot of people on boards are looking for success stories. Hopefully mine will continue down that path to be one of them!

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  #22  
October 1st, 2007, 08:11 AM
fiefer87's Avatar Mega Super Mommy
Join Date: Aug 2007
Location: Near Buffalo, NY
Posts: 4,336
Quote:
My son was diagnosed with Visual Maturation Delay at 4 mo. He had had heart surgery at 2 months. Normal MRI, although an insult found on his pons, but still told normal result, normal EEg and normal genetics testing. He has torticollis, acid reflux and is delayed gross motor-wise.

I have had such a hard time having patience with not having any other diagnosis, yet doctors, PTs and others all telling me that he has neurological issues! I do believe VMD is a neurological issue. My hope is strengthened just this weekend when my son seems to have switched off his constant fussing and is consistently tracking and smiling! He is 6 1/2 months.

A lot of people on boards are looking for success stories. Hopefully mine will continue down that path to be one of them![/b]
StaceyMB,

Thanks so much for the success story. We love to hear them. Welcome to JM and welcome to our board. I'm Jennifer, the host of VI children. We would love it if you would stick around. It is wonderful to hear your son is doing better. Keep us posted on his progress.
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<div align="center">Thanks Alison's Mommy, SillyMama, Katarina and samylaine for my blinkies.</div>
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  #23  
October 6th, 2007, 01:24 PM
Regular
Join Date: Oct 2007
Posts: 2
Quote:
My son was diagnosed with Visual Maturation Delay at 4 mo. He had had heart surgery at 2 months. Normal MRI, although an insult found on his pons, but still told normal result, normal EEg and normal genetics testing. He has torticollis, acid reflux and is delayed gross motor-wise.

I have had such a hard time having patience with not having any other diagnosis, yet doctors, PTs and others all telling me that he has neurological issues! I do believe VMD is a neurological issue. My hope is strengthened just this weekend when my son seems to have switched off his constant fussing and is consistently tracking and smiling! He is 6 1/2 months.

A lot of people on boards are looking for success stories. Hopefully mine will continue down that path to be one of them![/b]
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  #24  
October 6th, 2007, 01:31 PM
Regular
Join Date: Oct 2007
Posts: 2
Quote:
My son was diagnosed with Visual Maturation Delay at 4 mo. He had had heart surgery at 2 months. Normal MRI, although an insult found on his pons, but still told normal result, normal EEg and normal genetics testing. He has torticollis, acid reflux and is delayed gross motor-wise.

I have had such a hard time having patience with not having any other diagnosis, yet doctors, PTs and others all telling me that he has neurological issues! I do believe VMD is a neurological issue. My hope is strengthened just this weekend when my son seems to have switched off his constant fussing and is consistently tracking and smiling! He is 6 1/2 months.

A lot of people on boards are looking for success stories. Hopefully mine will continue down that path to be one of them![/b]


So pleased for you. My thirteen week old little girl has been told she may have vmd. Was there any special exercises you carried out to stimulate her sight?thanks x
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  #25  
October 13th, 2007, 12:21 PM
Regular
Join Date: Oct 2007
Posts: 2
Hiya,

I've just found this board and it's given me a little reassurance.

My son is 4 months old (12 weeks corrected - he was nearly 6 weeks early) and he's not really focussing on faces or objects. He's a big fan of windows and vending machines and can stare at them for hours and his pupils dilate properly and he's had the red-eye test but that's it.

It's been reassuring to, at the very least, find other mums in similar situations here and it's also given me hope that it's not something serious.

I've been referred to an ophthamologist - hopefully there will be some painless tests that can be run to give me more comfort.

Cheers
Vicky
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  #26  
October 15th, 2007, 10:18 AM
Regular
Join Date: Sep 2007
Posts: 2
We have worked with our son by moving toys with lights and sounds from one side of his head to the other. We also hold black, white and red pictures in front of him. I hate to report that while I still see progress, his sight still seems intermittent, however he is definitely still more content.

We have worked with our son by moving toys with lights and sounds from one side of his head to the other. We also hold black, white and red pictures in front of him. I hate to report that while I still see progress, his sight still seems intermittent, however he is definitely still more content.
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  #27  
May 6th, 2017, 03:15 AM
Newbie
Join Date: May 2017
Posts: 1
HiI found this thread on Google. I know it's 10yrs old but hopefully someone sees this. My 11wk old son is displaying similar symptoms not holding his head up or tracking objects he also doesn't smile. If someone could please let me know if their children got better it'd be greatly appreciated. We start physio this week I'm hoping he'll make progress soon
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