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I've been on Just mommies for a long while, belonging to the pregnancy and play groups. I went searching thru all the boards to see if there was one for children with vision loss and special needs.
My name is Paula, I live in Canada. I have two little girls.
My oldest daughter is almost 2 years old (2 on the 1st of May). We have been told she is legally blind. We are under going testing still, to see if it's a genetic related / or if she has a syndrome. We haven't gotten much results yet althought, we've been thru so many tests...from Cat Scan, MRI, blood, numerous ultrasounds/xrays.
My daughter has low vision /Legally blind. She also, has a smaller head/eyes and other internal body organs. Has anyone heard or has a child with similar issues?
Im very glad to have found a board on here, hopefully I'll be able to talk with other parents whom are going thru or been thru what we are going thru. I dont have much support around here.
sorry I didn't see this post till now. I don't know what disorder tha tmight be but prayers that they find out quickly or are able to treat regardless.
How long have you known she was low vision? Jsut curious.
Avery is my visual baby. She was born with congenital cataracts and has had 6 surgeries since she was 4 months old (21 months now) she is also legally blind/low vision. No way to really know what she sees. She wears contact lenses.