Log In Sign Up

been a while....


Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to boards@justmommies.com.

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Reply Post New Topic
  Subscribe To Visually Impaired Children LinkBack Topic Tools Search this Topic Display Modes
  #1  
September 18th, 2007, 09:56 AM
Member
Join Date: Oct 2005
Posts: 11
Greetings All..
My name is John and I haven't posted in awhile (Year and a half?)
My daughter Hannah (now 2 years 2 months) was born with Optic Nerve Aplasia (no optic nerves) and partially deaf (No left ear, partial hearing in right). She has a hearing aid. She had her right eye removed 4 months ago, due to a detatched retina and now has a prostetic eye. She is not having any other issues; just the ones that blind children have. She can stand and "cruise" along the walls...every once in a while, walk a few steps on her own. She does NOT sleep very well and is up most of the night. She is not speaking beyond "mama" and "dada".
My wife and I will be visiting the Western PA School for the Blind in a few weeks...just to see it and keep it as an option.
We are thankful that even w/ the "issues" we face, that we are blessed to have such a wonderful child!
Reply With Quote
  #2  
September 18th, 2007, 10:47 AM
fiefer87's Avatar Mega Super Mommy
Join Date: Aug 2007
Location: Near Buffalo, NY
Posts: 4,336
Welcome back. I'm Jennifer, the new host here and my daughter Alexis was born with septo-optic dysplasia (the more severe form of optic nerve hypoplasia with mid line brain deformities). She has some vision (about 20/400) but has a lot of other issues including the midline brain deformities (she has the absent septum pellicidum). She is 5 now and has been globally developmentally delayed since she was about 12 months. She never walked until she was about 2, never spoke until she was almost 3; she still delayed in speech, gross motor, fine motor, and is placed in a 12:1:1 special ed class for kindergarten (she will probably be here for a while). She has a growth hormone deficiency, primary hypothyroidism, and is adrenal insufficient. On top of all that, Alexis is being followed for potential hydrocephalus, and next Monday will probably be diagnosed with some form of autism spectrum disorder.

Hopefully the School for the Blind will be a great place. I know the one near us tends to be more for children with multiple severely disabling conditions in addition to the blindness. Cognitively, Alexis seems to be all there so we felt that environment was too restrictive. I'm glad that she is a wonderful beautiful little girl. Hope everything continues to come along. Hope to see you around the board.
__________________
<div align="center">Thanks Alison's Mommy, SillyMama, Katarina and samylaine for my blinkies.</div>
Reply With Quote
Reply

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off



All times are GMT -7. The time now is 02:06 AM.



Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0