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  #1  
September 20th, 2007, 10:29 AM
fiefer87's Avatar Mega Super Mommy
Join Date: Aug 2007
Location: Near Buffalo, NY
Posts: 4,336
I go on Monday for the feedback appointment for Alexis' independent pysch eval. We did acadmic testing and her Dr. mentioned autism or autism spectrum disorder then said he didn't want to rush to any diagnosis. Here is the link for the backround info (posted on developmental delays) http://www.justmommies.com/boards/in...owtopic=756384

I really think he's going to diagnose (sp) her with ASD and I don't know how I am going to feel about that. I mean we know she has some autistic tendencies, but without the diagnosis it didn't seem too bad. I just feel like I am adding one more label to Alexis. I mean she's already visually impaired, she has global developmental delays, she has multiple endocrine disorders, she's got brain structure abnormalities, and she's being monitored for hydrocephalus. She gets injections and pills everyday and the pills she'll have for life, the injections until she reaches her full growth potential (about 14-16 for girls) and now this.

We orignially did the pysch eval because our school district pyschologist completely screwed up the one for her transition to school age and we wanted an independent eval. I wasn't quite ready to her autism or ASD. I know I shouldn't be surprised, but I am. Sometimes I wonder what else is left?

I will keep everyone posted and let you know how Monday goes. Maybe I will have a better grip on things by then.
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<div align="center">Thanks Alison's Mommy, SillyMama, Katarina and samylaine for my blinkies.</div>
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  #2  
September 26th, 2007, 12:34 PM
fiefer87's Avatar Mega Super Mommy
Join Date: Aug 2007
Location: Near Buffalo, NY
Posts: 4,336
So we went for the feedback appointment for Alexis' neuropysch eval. It did not go well at all. She was diagnosed with autism disorder and moderate MR (mental retardation). Her IQ was 46. He recomended seeing a regular pyschologist for behavior mod for self stim and tantruming.

I was also so aggravated because she has had multiple MRIs and CTs done and no one ever mentioned to us that her corpus callosum was underdeveloped and that there was abnormal sulci and gyri (the ridges and valleys in the brain matter) patterns in her right temporal regions. I do not remember anyone ever mentioning this to us and her doc made a point of mentioning that even the radiologists that read her scans (I don't know which ones these appeared on) commented on it. So she has the brain structure anomalies and we never knew

So needless to say it has been a rough couple of days. I am just trying to assimilate all this and figure out how I feel about it. I really don't know yet.
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<div align="center">Thanks Alison's Mommy, SillyMama, Katarina and samylaine for my blinkies.</div>
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  #3  
September 26th, 2007, 05:27 PM
Platinum Supermommy
Join Date: May 2006
Location: Ohio
Posts: 6,869
So sorry your having to deal with all this. Kody had global delays when he was young so I know how scary it is to go for diagnosis. How old is she? Hmmm, she had multiple MRI's and scans done and they never caught it or told you? I'd be aggravated too.

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  #4  
September 27th, 2007, 08:50 AM
fiefer87's Avatar Mega Super Mommy
Join Date: Aug 2007
Location: Near Buffalo, NY
Posts: 4,336
She turned 5 in April. I am still so mad that no one mentioned the other brain structure defects, especially the underdeveloped corpus callosum. The corpus callosum is the main pathway for all nerve bundles and nerve fibers to pass through, so an underdeveloped one can lead to MR. If I had known hers was underdeveloped, I might have been more prepared for the MR diagnosis.

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