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On Monday morning last week Honey woke up miserable and not her usual sunny self. I assumed she was teethin and gave her calpol and teethin powder. All day she just winged and slept and would not feed. She got really drowsy and I took her temp, it was fine.
Eventually I'd had enough and decided to cup feed her some formula as she wouldn't eat or take the boob and she gulped it down, cryin with hunger wen I stopped for her to have a breather. She really seemed to be avin a hypo like after she was born, identical situation, just didn't get out of habd.
I called the ped, not knowin who to talk to and he advised us to come into the childrens ward asap and have her assessed. When we got there they took her temp and it was 39.9 degrees c! With all the rousin of that and doin her sats n pulse (which was also sky high!) she woke and fed, then was sick everywhwere.
They decided to put her in the "barrier nursery" and after over an hour they decided to do her blood sugar, it was 4.something. They put in a canula and she was sick again after screamin for ages. They took her blood sugar again later and
it was 8.something.
Becausse she'd been sick they assumed it was a virus. I don't buy that, she's had colds and viruses, it never affects her feedin, she's a real glutton! Both times she was sick there were reasons why it could have been. she wasn't violently sick everywhere!
They kept an eye on her for signs of dehydration, which she didn't have and bumped up her hydrocortisone for a couple of days. And she came home on Tues evening.
I am soooooooooooooooooooooo confused. It just doesn't add up. It cant be diabetes as she wasn't and has never gotten dehydrated, my ped said so. Her wee samples showed no signs of a UTI, her chest was clear. It really was like she had a hypo again, they were dismissive of it. I don't know why it started that morning, she was fine the night before too.
how frustrating for you. well i hope it doesn't happen again, it must have been pretty worrying for you, but, if it does perhaps they might pay more attention to you next time around. Glad she's back at home with you now. hope you're all doing well
Did they have a pediatric endo come in and check her cortisol levels? If her cortisol levels are low, she will get hypoglycemic, lethargic, decreased appetite, difficult to wake, and they will even vomit (went through this when Alexis was in the ICU). You may need to have her vortisol levels checked again (am ones) to see if her maintanence doses need to be increased. I know they bumped up her cortisol levels for short term, but they may need to be increased long term.
<div align="center">Thanks Alison's Mommy, SillyMama, Katarina and samylaine for my blinkies.</div>
That wwould make sense, but it was only about 8 weeks since they adjusted it, they put it up quite a bit. So frustrated that as its so specialised nobody knows wat they're doin! I have to keep on at them and suggest stuff cuz they dont seem to be able to work much out for themselves.
The last 3 days she's been back to herself, she's happy again.
She starts her growth hormones tommorow, postponed it cuz she was in one hospital in one city with the app in another!