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  #1  
December 10th, 2007, 12:42 PM
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Location: Jonesboro, Indiana
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I'm so upset/angry right now its probably a good thing the insurance company didn't answer my last phone call. Somehow they have not received about 6 bill from ds therapy!?? How in the heck can mail get lost 6 times to/from the same people?? Hmmmmm....someone isn't telling the truth I think.

Ok long story short (kinda). My 3 year old has Autism. He started therapy in Sept. It was supposed to be covered by DH insurance first then Medicaid Secondary. Originally he went 3 hours 3 times a week. It was all pre-approved! Then Medicaid changed their minds, and only wanted to cover 2 days a week. Fine, I didn't think it would make that big of a differance (little did I know) So we were hoping once insurance paid their part, that medicaid would go ahead and cover the remainder for all three day! So I've been waiting since October! Finally today I call insurance, they have no records of even getting billed!! They also never received the doctors letter of medical necessity!! Ok so I call the therapy center. She has billed them 6 times to the same address they gave me over the phone! So she is going to send them again, only this time certified. SInce this was a diff. person than I usually deal with I asked about the whole medicaid paying for all three days. And she told me there is no way to get them to pay more than the two days, no matter what insurance pays. Appearantly Indiana has differant types of Medicaid, and I just so happened to get stuck with the crappiest one!!

So I was going to call the insurance back and talk to someone and find out why they aren't receiveing their mail. I got voicemail!! But the first time I called the lady told me they are there from 8-5 Mon-Fri so the therapy place was lying about calling and not getting a response!! Right!!

So the upside is that there is another program I can apply for to get him even more than the three days a week. But there is a waiting list, and a $400 evaluation fee And as soon as my phone charges, I will call, but of course it went dead after two hours of dealing with this!! LOL

Oh and the reason this is so important is because DS is slowly regressing. His sleeping habits are getting bad again, he'll be up until 1-2am!! I can't get him to go to sleep. Heck I can't get him to stop running to even hear me! It's bad. He's getting really angry at things, and hurting his little brother. Thankfully he's not biting again yet, but he is pulling hair. He's not evil, he just doesn't understand not to do these things, he doesn't understand that they hurt. And the running is something he NEEDS to do. But for some reason he had stopped all this when he was going three times a week

And on top of all this. I'm having concerns about my 18 month old now too. I'm already terrified that he will also have Autism because the odds are good that he will. But I just kinda noticed that he really isn't talking at all, which was our first concers with Anthony. I can't even go to my PR anymore, because reading about what their baby's are doing, makes me sick to my stomach because my baby isn't doing any of it!
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  #2  
December 10th, 2007, 01:10 PM
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I am sorry that this is such a struggle. Have you tried any of the all natural diets that might be able to help? I could supply you with some info if you are interested.

Sorry, those people are being such a pain in the butt! HUGS!!!!!!!!!!!!!!!!
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  #3  
December 10th, 2007, 01:24 PM
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Location: Jonesboro, Indiana
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We have talked about the diets. I just hate to put him on a diet, and not the rest of the family. And we can't afford for all of us to go on it. I think we are going to atleast try almond milk, instead of the gallon of regular chocolate milk he drinks a day!

I would love any info you have though.
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  #4  
December 10th, 2007, 07:46 PM
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Here's a link for you on gluten free, dairy free diets that have shown results for kids with autism issues. What's her name, the girl who wrote the Belly Laughs books ... hmmm ... Jenny McCarthy has a kid with autism and has had GREAT success with similar diets. Google the heck out of it, and if you need help with the GF part ... don't hesitate to ask. I have a GF allergy as well.

http://www.autismweb.com/diet.htm
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  #5  
December 10th, 2007, 09:01 PM
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The diet works. My dd has been on and off of it thanks to the crappy school she was at before. We're slowly edging her back into the diet. For her, casein free has a more notable effect on her than gluten, but we're doing both.

I have a ton ofinformation on it. It doesn't have to be expensive. I've learned all the tricks. I'll post more if you're interested.
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  #6  
December 10th, 2007, 09:04 PM
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The special diets do not work with all kids though. My cousin is severely autistic and the diet did not work for him.
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  #7  
December 10th, 2007, 09:13 PM
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Location: Jonesboro, Indiana
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I think it's just the thought of putting him on a diet that scares me. He's already differant, it's becoming more and more obvious. But then to have him on a special diet, it kinda breaks my heart. I mean he wouldn't be able to go to a b=day party and eat cake unless I questioned it first KWIM?? Dh is really pushing it though, and I told him I would go for it, but only if we have him tested first. I want to know he has a sensitivity/allergy first. I'm afraid though that will be the hardest part, getting our doctor to order that test. I think that may be why I keep putting that off. I don't have the energy to fight the doctor right now, when I'm still fighting the insurance.

Plus I think I still have that tiny bit of hope that with all the improvements he already made, someone is going to tell me that he really is fine. That the stupid pyschiatrist that saw him for an entire hour is wrong and my baby really isn't Autistic. Sigh.......it's been a rough day for me sorry.
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  #8  
December 11th, 2007, 05:09 AM
MandiK's Avatar Platinum Supermommy
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I'll concur, Kris that it doesn't work for everyone, but nothing does. I'm not even convinced Jenny McCarthy's kid is 'cured' or anything, but there have been so many parents talking about it working that I feel like there has to be something to it that's probably worth trying. Gluten free and dairy free diets are pretty healthy either way, so it isn't like you're putting your kid on Atkins or some such craziness.

I don't know that I'd hold out for any allergist's testing or reports. It could just as easily say he's "fine". That happens constantly in people with GF issues. Or, they tell you wheat is out, but gluten is fine, which is usually a mistake. It's a little confusing at first, but it isn't really *hard* to do. I understand you wanting him to be as similar as possible to everyone else, but ... the reality is he isn't. He's special, and that's cool, and perhaps special diets for a special kid will help him (and you) through what he's dealing with right now.

I'm not even saying that it'll work like magic. It may not work at all. I merely lend credibility to the fact that it's had legit success in the past, and that it isn't as hard as it may seem.
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