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Life got really hectic and hubby wanted me to pull the plug on JM for a while so I did. Here is a quick update.
I decided to go back to school this semester and get life back on track. Turns out life didn't want to do that. Some of you know my now three year has his first seizure at the end of July. Well first diagnosed one, they think he had been having absent seizure for about a month before the big scary one. With that and school starting, I had to leave JM mid coupon trade and I am sorry I flaked on who ever sent my coupons I have felt guilty for months over it. Absolutely heartsick.
Well in August the meds they put my son on led him into more seizures. In October a girlfriend hear about a genetic defect called Angelman Syndrome or Happy Puppet Syndrome and since then we have been to more doctors than I have seen in my lifetime. Thank goodness for medicaid! In addition to his neurologist I now have a neuormotor developmental specialist, apeech therapitst, a psychiatrist, a psychologist, two pyshical therapists and we are meeting with genetics in Jan for furthur evaluation. Right now they do not think he is mentally retarded enough to be classified as an angelman's child, BUT they still want to do genetic testing to rule it out. I', fighting to get him into special needs preschool. They have a private program I want to get him into also for violent kids. Another thing is that his seizures and the meds he is on have completly changed his personality. My sweet, helpful mommas boy is now a violent, angry, definant (I know to some degree it goes with the age) and never sleeps I swear. He isn't afraid of biting strangers and it has gotten to the point where I can not be in public with him more than necessary, gone are my days of deal hunting. His physical therapist thinks he may have sensory processing disorder. Basically sitting still really screws with his brain and he has to do the same thing 200 times that a "normal" kid might grow bored of after 12 times. He also has no fear, clinically prove and doesn't learn from his mistakes. And he has limited pain response, so things like bruises down hurt him and he can really hurt himself and not even process that he should hurt. (Take that ER that told me he could possibly have broken his thumb if he wasn't screaming at the top of his lungs.)
In other news, his little brother terrified me last month with a possible bowel blockage. On Thanksgiving Day the bedroom ceiling collapsed and it took the landlord three miserable days to do anything. And the mold in my ceiling is kicking everyones butt this winter. The mice are back thanks to the weater and winning the battle over this slum we live in. That wonderful promotion my husband was promised was cancelled when they told him he had to "Certify" as an assistant store manager first and then turned around and promoted a new hired straight from CSA. It was the nice, thanks for running the store all summer and dealing with the press when that guy killed himself in your parking lot, we are going to promote this chick now and you are losing your hours, and you getting that wage garnishment for that id theft has nothing to do with our decision we swear. He is working with my brother now and happy to be doing physical labor so that is good. All the stress has given me a real complex, and I am looking for a therapist to help me overcome my phobia of driving.
All in all things are nuts I don't know when I will be back, but hopefully I can have time for JM again.
Thanks for letting me rant ladies I really feel better.
Sorry to hear you're going through such a rough time right now. I've heard of Angelman Syndrome, Colin Farrell's son has it. My nephew has sensory processing disorder. When they're driving and stop for a red light he gets very upset. I can't imagine how diffiuclt that is to go through. You know we're here for you