Hi everyone, I'm Melinda and my 2.5 year old Luke was recently diagnosed as FTT. He's always been small, around 3-5% since birth. But he lost a pound between December and April, and dropped below 1%. His pedi sent us to a developmental ped, who wasn't very helpful. He wants Luke to see a GI if he loses anymore weight. And then Luke's pulmonologist referred us to an endocrinologist.
His pediatrician has sent him for complete bloodwork. The only thing abnormal were his lymphocytes. They came back high, but 2 weeks later they had dropped some. We go back in July for another test to see if they've dropped more.
I've been trying to add heavy cream, avocado, etc to his foods. One problem I have is that he's anaphylactic to nut and egg products, so that eliminates a lot of the food ideas that the dev ped gave us.
He loves to eat, but he tends to prefer foods like fruit, crackers, cereal. He'll eat meat, but not cheese for the most part. And he doesn't care for avocado, so I try to sneak it in with other stuff.
Anyway, I was glad to find a board for FTT :)
Re: Introducing myself
HI! I understand the extra calories thing ALL too well. :( Danny is allergic to REggs, Milk, Soy, Tomatoes, Carrots, Red 40, Cinnamon, Tree Nuts and strawberries. Danny will be 4 in July and weighs 31 pounds. That isn't horrible except that he gets 2000 calories a day and had lost weight from his GI visit in mid-April to the one a few days ago. His weight is decent...his history with weight is basically flatline with a few spikes with introducing a new med or formula. He also has an overarching condition that may be contributing to this... We add goat cheese to a lot of stuff as he can tolerate that (It is really good on wheat crackers). There is also a product called duocal. We don't need extra calories at this point so we haven't had to try it and I don't know if it is okay allergy wise but you can look into it. It adds a few hundred calories easily. :) You can add extra butter, extra cream, extra cheese to things. You can also try him with bologna, salami, etc as they are fun as meat rolls and are both high calorie. I hope that adds a start. :)
Re: Introducing myself
Have you tried the high calorie juices like resourse breeze? You'd need a script for them, but they add so many calories. Worth a try!!
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