Well, as I feared, Anna did not gain hardly any weight since her 12 month well visit two months ago. She is now 17 lbs, 9 oz, farther below the charts than she was before. There is no percentile for her anymore, and the doctor is toying with the idea of officially declaring her FTT.
She said that she is so far below the chart now that she would consider sending us over to the children's hospital in the city to have a full evaluation. She said we could go home today, but that she would call the specialist over there first thing in the morning to get her opinion. At this point, she considers Anna's condition "Urgent" in that she may be close to the point where her weight begins to affect her physical and intellectual development. She told us several times that she is not an alarmist by nature, but in this case, she says more drastic measures are needed.
Once she talks to the specialist at the children's hospital, we will do one of two things: 1) Be admitted to the hospital and go through a bunch of test and observations to determine if there is any more to her low weight other than just pickiness and stubborness; or 2) Have a nutritionist come to our house and observe how we feed her and also be referred to a GI specialist to rule out any physical digestive problems she may have. Did any of you have to go through something as aggressive as being admitted to a hospital?? I don't know if it is standard in our situation, or if it's just the fact that we have a children's hospital down the road with this eating program that our dotor figures we could take advantage of.
I can't believe it has come to this. I was nervous about her weight, but I had no idea that if the weight gain goal wasn't met for this weight check that it meant all of this. DH and I are sick over it. Just sick. How did we get here?? How have we failed?? Honestly, I am racking my brain to figure out what the hell I could have done differently, and I just don't see it. I don't understand. It seems as though Anna is intentionally starving herself. I offer her more food than she ever eats. I offer her her old familiar favorites with every meal as well as something new to see if she'll like it. I've tried changing her eating environment, her eating schedule, everything. Seriously, everything. I can't think of one more thing we could possibly do.
I mean, I had to hear today that my baby might need to be admitted to the hospital over this!! I'm finding out in the morning what is going to happen. I don't know why this has happened. I just don't. I have no answers. This is my baby!
ETA: Here is her growth curve...
Ok, don't freak out just yet. I know it's a very frightening. Brandon has never been admitted to the hospital for like a long amount of time, but, when he's had certain tests done (when we got a blood and urine sample, did his sweat test for CF etc any test done at the hospital) he was technically admitted during that time. B was labeled FTT at 6 mo when he fell totally off the chart as well, we have never found a reason for it. My nephew (who is 6mo older) fell off the chart at 12 mo (the same month B did) and he went through all the same things. Both boys are totally fine now, so please let that make you feel better.
I can't remember the specifics of Anna's case (does she drink milk?) but we were told about a powder called Scandishake, here's a link. You add one packette to 8oz of whole milk and it makes 600 calories. Our GI doc said we could give him a shake a day and it really, really helped. I would give him half in the morning (it did make him less hungry when he had it) and the rest after his nap.
Another thing that we did was give him a prescription to Periactin, you may want to ask about this medicine. I think it's an allergy med but one of the side effects is increase in hunger. Brandon eats like a maniac when he's on this and can easily put on a lb in a weeks time. I've taken him off since he's back on the chart but his doc said I can give him more if I notice him going back to his old ways.
Now, what you said about it possibly effecting her physical/intellectually...Brandon (and his cousin who's been through this) are two of the smartest, most physical boys I know. Reading through the posts in my PR I've learned Brandon is at or above where all the other children are. He's got a huge vocabulary, large understand of commands and walks and runs just fine.
Please PM me if you need to talk. I even have IM if you ever want to chat that way. I know first hand how terrifying this can be and I hope it helps you to know that several of us have been there and our kids are totally fine. HUGS. Please keep us posted!!
I would try not to panic yet... Andrew has been diagnosed FTT at around a year as well since starting at around 9 months old he was only around 3 % for height and weight. He is 21 months now and at 20 months he was only 19 lbs. We have never been admitted to the hospital because of it, but we have been going to Children's Hospital here. We have been to a GI SPecialist, cardiologist, and will be going to an endicronologist in August. They have done so many tests on him including CF, liver, kidney diseases and everything else you can imagine. So far everything has been negative. Andrew is a very picky eater and sometimes won't even eat dinner. He drinks 2 bottles of pediasure a day for extra calories and nutrition. He has never lost weight, which is a good thing. Which from looking at the growth chart you posted, your daughter hasn't lost weight. So that is a good thing! Your doctor will probably refer you to some specialists who will do tests on your daughter to make sure it isn't an underlying problem. To me at a year and she is 17 lbs 9 oz, that is very good. My son will be 2 in a few months and I am hoping he will be 20 lbs by then:) Anyway, since all of the tests so far have been negative, we have been refered to an endicronoligist to see if it is a growth hormone issue. I still think he is just a small kid. He is a picky eater, but is very active. If you ever need to talk, feel free to pm me and I can send you my email address. I know how you feel and it is hard not to worry because they are your baby. Please keep us updated.
My son had FTT issues when he was younger, so I am just popping in with some encouragement.
The thing that stood out most to be was when you asked what you and your husband have done wrong
you are doing everything you can to make her better, so dont beat yourself up, keep your head up, there is light at the end of the tunnel
I've been thinking about you guys. Any news?
Ladies, i'm kinda new here (it's been a year since we were here) My youngest DD Kendal has never been on the "chart" she weighed 4/14 at birth and that was at 37 weeks. She'll be 3 next month and still weighs 21 lbs, has not gained since last august. Docs considered her FTT for a very long time until we went to allergist. She's allergic to EVERYTHING!!! (Casin (milk), eggs, wheat, chocolate, orange, sweet potatoes, carrots, turkey, chicken, cod fish, pears, grapes, cats, feathers, and grass)
Gastro doc wanted to do an upper GI on her and i refused it because all the stool tests they did came back norm and there was no sign of a problem (vomiting and diaherria*sp*) .. have you had stool tests done? They did the CF test and came back neg.. put her on a weight gain powder and still no gain..
Her allergist tells me not to worry about her weight because she's just petite. (it runs in hubby's family--- French Candian)
I wouldn't stress your self out (easier said than actually done, right?) People are always going to "talk" but that's because they have no clue what its like.
Hugs and Good luck..
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