Daily Archives July 28, 2012


photo “Hop in the shower and you can get some of the sand off, Bob.” “Mom, can you lock the door, please?’ “Don’t worry Bob, I won’t let anyone in.” “Okay, but can you lock it too?” “I’ll stand right here in front of it.” “Mom, does it have a locking mechanism?”

Hello there

I know I’m terrible at posting.  We are trying to enjoy our Summer.  Kings Island, movie theaters, Cincinnati Zoo and whatever else we can find to do.  Doctor appointments and therapy visits round off our weeks.  We’ve seen Endocrine (nothing new, rediscussing GHT), Pulmonary (started a couple new meds, discussed BiPap and IVIG), Gastro (started…

Weekend Wrap-Up

This weekend went by quickly.  Rob didn’t make it home until 7:30 in the morning on Saturday and had to leave this morning at 2 a.m., so part of me wonders if he was even here at all or if I imagined it. I have to be honest, I was a little bummed out this…