Topic: Lupus
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June 20th, 2008, 11:00 PM
mjtamjj's Avatar
mjtamjj mjtamjj is offline
Join Date: Feb 2008
Location: texas
Posts: 422
Hi Grace
my name is Margaret. I can't really answer your question about the rash clearing up, but I can tell you that she definetly needs to see the specialists. I was diagnosed with SLE lupus in 1999 I was 19 years old. My daughter was about to turn 2 years old when I was diagnosed it is scary and you don't want to believe something like this is happening and why it's happening to you. I thought that if I ignored it, it would go away. I haven't had any flare ups in years, the worst one I had was when they diagnosed me and I had to be hospitalized for 2 weeks. I have the lupus that affects the organs, it is different than the one your sister has. I do have swelling and joint pain the joint pain can sometimes be unbearable. I had to see the doctors monthly now I am down to twice a year. I would strongly recommend that you insist on her making appointments to see the specialists, especially if she is having swelling and joint pain. I'm glad to hear that she has a very supportive family it helps knowing you have suport from people that care and love you.
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