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March 21st, 2009, 03:58 PM
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Wendy1109 Wendy1109 is offline
Join Date: Mar 2009
Location: Fredericksburg Va
Posts: 147
Hi My name is Wendy. I have 5 children #6 is on the way My oldest dd has cf. We are constantly battleing the weight issue. Right now we are on a down ward slide. The Dr has up her tube feedings to 4 cans of nutren 2.0 everynight (thats 2000 calories) plus he wants to get 500 more calories in her on top of all the food she eats durning the day!! This is almost impossible considering school and the rest of the medical treatments she has to do. URGH its just never ending. She is 11 and is rebelling against the stuff she has to do , which is normal for her age. anyone else going through this with an older child?
My other children do not have cf my only carrier is my dd Natasha.
Wendy mom to
Kiersten 2-13-98 w/cf
Natashya 2-24-00 w/o cf
Scott 10-18-01 w/o cf
Sanamtha 11-29-02 w/o cf
[CENTER]Killian 5-29-08 w/o cf
[CENTER]Lorelei Belle 10-24-09
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