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October 14th, 2009, 03:18 PM
KPKoze's Avatar
KPKoze KPKoze is offline
Join Date: Oct 2009
Location: Colorado
Posts: 39
Hi, I'm Kristi and I'm new. My son is Hunter and he was born 5/12/07. Stupid Dr. missed that he hadn't grown in 6 weeks and I'd lost all my fluid (I had a perfect u/s at 32 weeks). He now has Spastic Diplegia Cerebral Palsy because of the periventricular leukomalacia injury to his brain. It was a painful NICU stay when he was born and I now have a true spot in my heart for the NICU.

We do PT, OT, ST, Myofascial release, Functional Electrical Stimulation, Phenol/Botox injections, AFO's and nightly Baclofen. He went through an FTT period and it was related to him silently aspirating so badly so we have done liquid thickening to correct that. He used a walker starting at 14 months and now at 27 months we're transitioning to forearm crutches. Still can't talk very well but he's pairing vowels and consonants now so we're on our way!!

Hope to get to know more people around here and compare some notes some time

I can't post pics from work but I have a picture of the whole family from this summer at SIL's wedding as my profile pic!
Kristi~ Mom to Ryanne (12/31/05) and Hunter (5/12/07).
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