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November 5th, 2009, 09:59 PM
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Cheep Sk8 Cheep Sk8 is offline
Join Date: Dec 2008
Posts: 212
My daughter was diagnosed with FTT at 11 months and hypothyroidism at 12 months. She has been on synthroid ever since and honestly its done nothing to improve her weight gain, but she has severe feeding issues along with several other problems. We finally saw a geneticist last August and it turns out she has a NF1 caused by a microdeleted chromosome. I'm told that this would not of shown up on a regular genetic screening (whatever that is).
ETA: I had been asking for almost two years if there was a possibility that all of her problems were connected and was always told that she didn't have the "look".
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