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OatmealKisses August 9th, 2013 08:23 AM

Worried about my son
My son is still 99% non-verbal. At 6 months he could say Dada and shortly after Mama. He has said dog, but doesn't pronounce the G. He has said ball but almost never. The problem is he has said these things but they diminish. They just stops and you can't get him to do it again to matter what. He mostly just screams. It is VERY draining on everyone around him. It is extremely hard to take him out in public because I know he's going to start screaming and I'll have to leave immediately. He has never said two words together and some months he won't say one word at all. After his naps he has melt downs that last anywhere from half an hour to 2 hours. Nothing stops them, they just have to run their course. We can't figure what is causing them. I feel like a failure as a parent.

Rachel August 9th, 2013 10:46 AM

Re: Worried about my son
((hugs)) You're not a failure! Have you thought about having him evaluated? Do you live in the states? Each state has a birth to three or early intervention program. It's under the board of education, but they work with children from birth till they go to school. I would ask his doctor about it. You generally do not need a referral, but your doctor should have the information.

OatmealKisses August 9th, 2013 11:03 AM

Re: Worried about my son
The only reason why I haven't done that already is because my MIL. My SIL has a son who was diagnosed as Autistic and re-evaluated later by someone else to not be autistic and now they can't get the label taken off. Which I realize has NOTHING to do with me or my son and is preventing me from getting him care. However, we live with my ils and if I went ahead and did it anyway it would cause a lot of problems. Regardless, his pediatrician said that if he doesn't make significant improvements by his 2 year check up, the end of next month, he is going to call in and refer him. So it will be out of my hands and he will get an evaluation without me being "the bad guy."

Rae-of-Sunshine August 11th, 2013 07:03 PM

Re: Worried about my son
I don't stop in here much, but I was killing time tonight and saw this. I understand not wanting to upset the ILs when you live with him, but he definitely needs evaluated, and should qualify for sure. My son has been involved with Early Intervention since he was 19 months. The pedi referred both he and my daughter then for speech. At the time my son had maybe 2-3 almost words, but rarely used, and my daughter maybe 6-7. My daughter we ended up never having officially evaluated, because by the time we started their process she had picked up a lot an based on their basic questionnaire we didn't think she would qualify (at 26 months she is talking up a storm, so that was the right decision). My son on the other hand definitely qualified for both the speech and the social/attention type aspects. He reminds me a little of what you describe in your son, because he would throw terrible tantrums after his nap if he was woken up from it (usually by his sister). He wouls just be inconsolable for a while. At the time we honestly weren't sure he even understood us. We knew he could hear, but there was no recognition or even acknowledgement of what we said. He started speech therapy twice a week at 19 months and once a week with an ITDS (Infant and Toddler developmental specialist a few weeks after that). We started to see improvements in understanding and attention slowly, but not really in the speech area. He babbled plenty and they were very pleased with the variety of sounds he babbled, but no words. I remember at his 2 year appt telling his pedi that he had 6 words. Then all of the sudden within two weeks after that he opened up and words started coming out left and right. Now at almost 27 months he is still not as talkative as his sister, but he puts words together like "Yummy gapes (grapes) mama" "More nana pease (please)" and is just starting on possesive's like "dada's chair" and we even saw a verb the other day "I try" - though he was parroting his sister. As of last week he has officially tested out of speech therapy, though we are continuing with the ITDS once a week to monitor his progress and make sure he stays on track.
Anyway, that was a long story to tell you that the Early Invention process was great for us. They walked me through everything, gave me choices in what we wanted to do based on their recommendations and it is 100% free. If you have any questions at all on it, feel free to message me as someone who is in the midst of it right now.

Rae-of-Sunshine August 11th, 2013 07:09 PM

Re: Worried about my son
Oh and with me at least they were careful not to label him anything at this point. One of the specialists that evaluated him said just to me that he was showing some early signs of autism, but that at this age those same signs could simply be the devleopmental stage they were in. He said he would not be surprised at all to have me come back in 6 months and prove him wrong on that. Mostly he just wanted to make sure that I wouldn't be totally surprised to hear that some day (and honestly at the time I was already thinking some of that myself .... though 8 months later I would have to say now if he is at all, then it is very minor and not something I would want to label him with either at this point). Anyway, they are good about helping and not labeling at this age.

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