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April 11th, 2011, 09:17 PM
nvr.4.gtn nvr.4.gtn is offline
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So Miss Avery was diognosed with reflux around 2 or 3 weeks old. We started teh myloox (spelling) route, and I think we poured half a bottle down her throat in a few days. So we then when to zantac... like giving her water... did the swallow ultrasound, where they used ultrasound to see how often she was refluxing. She did like 20 times in 15 minutes, and a few were the big ones past mouth and into nose. So then we were on prevacid. Prevacid worked beautifully! She stayed on that from about 6 weeks till about 11 or so months old. She was weaned off with no issues.
Then it came back around 17-18 months. Back on prevacid we went. Everything was fine then too. Well then she had 3 surgeries in a month, and as soon as we had the first one, the reflux came back even though she was still on the prevacid. Screaming at night, grabbing her throat and saying "owey!!" hick ups, gurgling in her throat ect. so we talked to the ped. at church and she said that if we tried motrim and it wasn't helping then most likely it was the reflux coming through the prevacid. So off to the GI we go on Wednesday.
I have friends that see him, so I know he is pretty hands off as far as surgery and testing goes, but I am sooo scared he is going to want to do a biopsy on her. This poor kid at 21 months (today) has had 6 surgeries and 3 of them in the last 4 weeks. I am so NOT putting her thorugh more crap!
From what I was told between my 2 friends that have kids that see him and my ped. he most likely will put her on Nexium for a few months and then see how she is doing, then possibly do a biopsy.

so I just had to vent to others that have delt/ are dealing with reflu babies! What a mess!!!

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