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June 26th, 2011, 08:01 PM
MauMama's Avatar
MauMama MauMama is offline
formerly La_Sirena
Join Date: Apr 2011
Location: Aotearoa
Posts: 317
I'm so sorry your little one has been so ill.

Have you and your doctor looked into autoinflammatory illnesses like FMF or TRAPS? I was clinically diagnosed with TRAPS because of the recurrent fevers I get. My daughter gets them as well. They are quite rare, unless you are from certain ethnic backgrounds, but they are actually becoming quite a common find in families.

I would be wanting to know that his lymph system is doing ok, even to the point of getting a scan. I would want every stone unturned because I know how awful it is to have such a sick kid so often.

Keep a fever log as well as a symptom log. Log things like headaches, light sensitivites, joint pains, etc.

It has been a loooooong process for us.

Jen + Matt
Parents to Sophie, the Wondergirl
Asperger's Syndrome
Joint Hypermobility
GERD & Constipation

Angels Autum & Isla (2007)
+ 7 others (2002 - 2011)

Mama with arthritis & connective tissue disorder called TRaPS
I've been charting since Jan 16, 2001 and TTA since April 2007.
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