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June 28th, 2011, 01:08 PM
EmG EmG is offline
Super Mommy
Join Date: Aug 2010
Location: Reno, NV
Posts: 767
Originally Posted by MauMama View Post
I would be wanting to know that his lymph system is doing ok, even to the point of getting a scan. I would want every stone unturned because I know how awful it is to have such a sick kid so often.

Keep a fever log as well as a symptom log. Log things like headaches, light sensitivites, joint pains, etc.

It has been a loooooong process for us.
I have started his fever log. He also has light sensitivities. He has never complained of joint pain that I am aware of. But I am keeping a log of everything that happens until his next visit.
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