Topic: How long??
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July 22nd, 2011, 11:11 PM
MauMama's Avatar
MauMama MauMama is offline
formerly La_Sirena
Join Date: Apr 2011
Location: Aotearoa
Posts: 317
I've had issues since I was a teen and before that as a child. Lots of fevers, always sick. Always on antibiotics. I was struck down with Mono at the age of 13 and it took months to recover. I don't feel I was 'right' for a long time after that. The disease was causing scar tissue in my uterus and I didn't have a laparoscopy done to remove it until I was 22. So a long time coming for that.

I didn't get formally diagnosed with TRAPS until 2009. I've since had it taken away and then given back. My gene tests were negative, but they only tested for 3 altered genes, not the entire spectrum of the disease.

I've read most women don't receive a diagnosis until 5 to 7 years after the initially seek medical assistance.

Jen + Matt
Parents to Sophie, the Wondergirl
Asperger's Syndrome
Joint Hypermobility
GERD & Constipation

Angels Autum & Isla (2007)
+ 7 others (2002 - 2011)

Mama with arthritis & connective tissue disorder called TRaPS
I've been charting since Jan 16, 2001 and TTA since April 2007.
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