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May 30th, 2012, 09:19 AM
AJsNana1215 AJsNana1215 is offline
Join Date: May 2012
Posts: 3
I just joined this sight today. It is nice to find a sight where we can share our experiences. I have a 17 month old granddaughter that was diagnosed with SOD when she was 4 months old. We are not sure what she can see, but it appears that she does have some light perception (she sometimes squints at the sun). She also has a pituitary problem. She has to take thyroid medication and growth hormone injections each day. She currently has occupational therapy, physical therapy and speech therapy. She currently lives with my husband and I as her mother is not responsible enough to take care of her. It is sad, but the baby (Anmariah) is very happy and healthy. She does not seem to have any problems learning things, but she is not walking or crawling yet. Her therapists are working with her on it.
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