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June 20th, 2013, 08:37 AM
mommy to alexander mommy to alexander is offline
Join Date: Dec 2005
Posts: 298
I know she doesn't post here much anymore because it's just too hard for her, but she is going through some pretty devastating stuff. Please look at her blog and keep her in your thoughts.

X-Linked, Y us? | 2 girls, both with rare diseases. Idiopathic Pulmonary Arterial Hypertension and X-Linked Periventricular Heterotopia

I couldn't imagine all that they are going through.
Krystal mommy to Alexander-7, Elizabeth-3 and our baby Morgan born with Angel Wings 2-27-08

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