Topic: Rowan Updates
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August 20th, 2013, 01:19 PM
shen7 shen7 is offline
Platinum Supermommy
Join Date: Aug 2010
Posts: 6,057
That sucks that PT isn't more frequent or better scheduled also, maybe I'm off base, but if the only reason to stop the gavage method is the fear of him strangling on the feeding tube, is there not some way to fix that??? Like some kind of tight fitting outfit or jacket with a pocket for the tubing, and then keep the bottle fixed somewhere away from his upper extremities out of reach? It seems like surgery is just a bit extreme if there's any possible way to do it by mouth. Clearly I am not an expert but just trying to think out of the box here.

I hope he improves a lot in the next 4 weeks and doesn't need any invasive testing!!

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