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August 2nd, 2007, 11:27 AM
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fiefer87 fiefer87 is offline
Mega Super Mommy
Join Date: Aug 2007
Location: Near Buffalo, NY
Posts: 4,336
Hi I'm new here and your question about children born with SOD promted me to write. My daughter was born with septo optic dysplasia. She is now 5 years old and getting ready for knidergarten. Alexis has optic nerve hypoplasia in both eyes, but does have some functional vision. She sees shapes, colors. large objects, but does need a cane to navigate new surroundings. She is also growth hormone deficient, cortisol deficient, and thyroid deficient. She has the absent septum pellicidum also characteristic of septo optic dysplasia. She does have some severe developmental delays and does not function an a developmentally normal 5 year old level. She is delayed in all areas, cognitive, gross motor, fine motor, speech, and needs an orientation and mobility instructor to learn how to safely navigate areas. If you have any questions at all, please do not hesitate to contact me.
<div align="center">Thanks Alison's Mommy, SillyMama, Katarina and samylaine for my blinkies.</div>
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