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-   -   New to Autoimmune board (https://www.justmommies.com/forums/f379-autoimmune-diseases-and-disorders/1538562-new-to-autoimmune-board.html)

SweetTxRugrats April 27th, 2009 10:13 PM

New to Autoimmune board
So, for almost a year I have been getting spells with bad cramping in my stomach, getting light headed, seeing spots, passing out. Well, they have got worse with now me vomiting for almost 2hrs. Anyways, I went to the doc and some girls I know suggested gall stones. So, the doc got blood work. My pancreas levels are higher than norm, my rbc, wbc,hgb, hct are all low. My protein is high and the antibodies are high along with whatever Gran # is.

So, my family doc got more blood work done--
my amylase was high, my gamma was high, my igg was high and my igm was high.

My doc did a rheumatoid arth. blood test & it was neg, he did a sedimentation test and it was high & today I found out my ANA test came back positive as well.

I have had swelling of joints & joints hurting, I have hypothyroidism, high bp and am on anxiety meds. I also have got mouth sores for a long time and I get tired pretty easy.

I have a doc appt on May 5 for my reg yearly appt w/my family doc & he is going to talk to me then about what to do.

My question is, I do think it is lupus--my older sis has Lupus but, I am not familiar with a lot of these blood results.

Has anyone been in my shoes?

M!che!!e May 2nd, 2009 06:51 AM

Re: New to Autoimmune board
what antibody test did he do for you? was it just a generalized or specific test? if he tested your anti-ds dna, anti ro or anti la antibodies and they came back positive there is a good chance you have lupus. testing positive to one of these antibodies fits one part of the 11 diagnostic criteria for lupus. in lupus, your rbc and hct would be low but your wbc should be higher than normal, showing that your white blood cells are on the attack. your protein levels, mostly your c3 and c4 would be lower than normal,not higher. i don't know what a gran # is.

ultimately it is up to a rheumatologist to diagnose lupus, have you been referred out to one? you do have alot of the symptoms, with anemia, mouth sores, positive ana and sore joints but only a rheumatologist can decide if they are indicative of lupus or something else. i would definitely go to a specialist and make sure that is what you have.

even though lupus isn't considered "genetic" there seems to be some link there. so if your sister has it then you just might have it. my aunt had lupus and i was just diagnosed with it in the past year. my husband's aunt has discoid lupus (affects skin, hair and joints) and her daughter just was diagnosed also.

i wish you the best of luck and i hope you get answers soon! kup!

SweetTxRugrats June 26th, 2009 07:08 PM

Re: New to Autoimmune board
well, i went to the rheum & got diagnosed after giving the lab nine vials of blood. I have Sjogrens Syndrome.

Celena March 14th, 2010 11:45 PM

Re: New to Autoimmune board
Kellie how have you been?

What kinds of treatment does your doctor have you on for your SS?

SweetTxRugrats March 24th, 2010 02:37 PM

Re: New to Autoimmune board
Hi! I have been a busy bee. I am on plaquenil and a baby asprin. I was on an anti-inflammatory but my kidney function was being effected. my blood counts are low as well and the Sjogrens has been pretty active. I am fixing to get a bunch of dental work done to fix what Sjogrens has done to my teeth.

Celena March 28th, 2010 06:56 PM

Re: New to Autoimmune board
Welcome back!

What exactly does it do to your teeth? Has it weakened them?

I'm sure you're a busy bee... I have children similar in ages as well and can related ;)

Can you explain your experience leading up to your diagnosis when you have time? Thank you and welcome back :D

SweetTxRugrats March 28th, 2010 08:38 PM

Re: New to Autoimmune board
yah I get a dry mouth A LOT, tired very easily, hurts to lift my arms up a lot. With sjogrens you don't produce a lot of saliva so, your teeth decay very easily & very fast. The anti inflammatory med help with the muscles & bones but I can't take them so i just get pain med when I need them. I could/can sleep around 15 hrs a day if i was allowed. My memory isn't as good as it used to be either. Sjogrens effect every place in your body. Before I got dx I thought I was going crazy, I couldn't get enough sleep, I kept getting mouth sores which is from not producing a lot of saliva, I was forgetting stuff and I hurt a lot. Now it all makes sense.

Celena March 30th, 2010 07:46 PM

Re: New to Autoimmune board
It's crazy how similar Autoimmune diseases symptoms are... my mom had some of the same symptoms before her MS diagnosis and I have a few of those as well before the dx of FM (which I'm not convinced on)

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