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Pregnant with Epilepsy

Forum: High Risk Pregnancy


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December 22nd, 2013, 05:50 PM
Join Date: Dec 2013
Posts: 3
When I found out I was pregnant I was really freaked out. I haven't been with my boyfriend for a year but he is the greatest thing to happen to me. I missed my period & thought I was just stressed, I had been trying to find a job for awhile. I didn't think much of it & shrugged it off, I hadn't had any symptoms. I was gonna wait until the end of the following month to take a pregnancy test, but something in my mind told me to take one. I was so scared to go home and take it I went straight to WalMart, bought a pregnancy test & took it there. My boyfriend was thrilled & still is. I told my mom after my boyfriend and she was happy. The more the pregnancy goes on the more excited she gets. My boyfriend told his mom after I told mine and she is excited too. My dad & his family thought I needed to get an abortion, because I have epilepsy and took Topamax. They heard about all the possible birth defects & thought abortion was the safest bet. I refused.

I knew I had to get off the Topamax, the further the pregnancy went on the higher the possibility for birth defects. So I met with my neurologist and he switched me to a different medication. The side effects were TERRIBLE. I was nauseated, dizzy, & felt like a zombie. I couldn't get out of bed. I met with my neurologist again and he put me on Lamatical. It has been working, UNTIL I started working.

I worked at a detention center as a nurse. I liked the job at first but after the semi-orientation I got the work got piled on. I had horrible morning sickness and was soo nauseated all the time. Then the stress got to me. I had one seizure at 2 months, went to the hospital in town & was taken care of as best as they could since I was pregnant. Then I had massive seizures, but I didn't go to the hospital for that. Originally I went to the hospital where my OBGYN is for shortness of breath. From the moment I was in triage to laying on the bed, everyone just rolled their eyes and told me over and over it was normal. But it was getting hard to swallow. Well shortly after laying on the bed I had a seizure. Apparently I had several-my boyfriend went with me and told me everything that happened. The hospital staff didn't think I was having a seizure, they thought I was faking it. Apparently they wanted to discharge me to a mental hospital. My boyfriend said no and took me home.

I eventually resigned from my job at the detention center, I hadn't worked a full week-they were 12 hours & really hard on me, especially since I live an hour away & had to wake up super early to get to work. On top of that I had been in the ER twice and called in for the next day. I knew I wasn't being a great help and leaving them short staffed. So I eventually decided to resign. Since I have my health has really gotten better, I haven't had any seizures since.

But I'm really nervous about giving birth, I don't want to have a seizure while giving birth. I also don't want to pass this on to the baby. I hope it all goes well.
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December 31st, 2013, 07:37 AM
rebeccabaltimore and more's Avatar (rebeccabaltimore)
Join Date: Feb 2009
Posts: 1,733
My sister is epileptic. She switched from Tegretol to Lamictal when she was ttc. She got pregnant, and about halfway through the pregnancy they increased her dosage. Nine weeks ago she had a healthy, happy baby boy!

Thank you Vicki for my awesome siggy!!

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January 9th, 2014, 06:55 PM
MandyAnn's Avatar August 2015 DDC Co-Host
Join Date: Oct 2013
Posts: 2,852
I'm TTC and also on Lamictal. I worry about low birth weight and cleft pallet. I pray every day that our future baby will be healthy.
Baby #2 Due August 2017

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January 12th, 2014, 08:47 AM
rebeccabaltimore and more's Avatar (rebeccabaltimore)
Join Date: Feb 2009
Posts: 1,733
My nephew was seven and a half pounds when he was born, and she was induced a week early. Despite the Lamictal, he was a total chunk!

Thank you Vicki for my awesome siggy!!

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April 24th, 2014, 01:48 PM
Join Date: Apr 2014
Posts: 2
I'm curious as well I don't have epilepsy but I was taking divalproex for bipolar disorder and wasn't able to stop taking it until I found out I was pregnant (about 6 weeks). I also worry about managing my illness during pregnancy as well as the risks to my unborn baby for being exposed to this medication during early pregnancy.
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June 6th, 2014, 05:34 PM
Spottts's Avatar Mega Super Mommy
Join Date: Mar 2013
Location: Florida
Posts: 1,476
I took Lamictal from 11 weeks until delivery at 35 weeks 5 days. I conceived while on it but was off by 5 weeks. I had twins and preterm labor multiple times which is why they were early not the med. (My first DD was born at 38.0 weeks. 6 lbs 13 oz; 19 1/4 inches)

Baby A was 5 lbs 4 oz; 18 3/4 inches
Baby B was 5 lbs 13 oz; 19 inches

The girls came home with me from the hospital. (Steroids to develop their lungs happened earlier in pregnancy) They're 7 1/2 years old now.

The only physical problems are asthma and allergies for both, although to different degrees. However both the father and I have allergies so they had a 75% chance of having allergies anyway.

They have 0 cognitive problems. Both had a PsychoEducational evaluation (IQ testing) and are in the Gifted program.
Mom to 4 girls - age 11 (1/05), 9 year old twins (1/07), 21 months (7/14) and baby BOY is due May 26, 2016.

Sept. 2013 3/10/15
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