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Forum: FTT and Weight Gain Issues


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September 9th, 2008, 05:37 PM
1shortmomma's Avatar Platinum Supermommy
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Post a little introduction to yourself here so that we can all get to know each other.
~ Renee ~

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September 10th, 2008, 08:37 PM
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Location: Southern Indiana
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I'm April and my DD is Carly. Carly is on the small size. She has been "less then the 5th percentile" since 6 months. She turned 2 in August and weighs 21 pounds. Her old ped ran test after test on her. Everything was fine.
Mom to Issac (8/22/99), Carly (8/10/06), and Zack (2/7/11)
Surromom/Aunt to Luke (1/21/09)

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September 10th, 2008, 09:01 PM
*tacii's Avatar Platinum Supermommy
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Location: Alberta, Canada
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Hi all, I'm Tracy (22). I'm a respiratory therapist student in my 3rd and final year, currently doing my clinical practicum. Jonah is my little guy. He's 15 months and weighed in at 16lbs 13oz. He's been less than 3rd %ile for both weight and height since 6 months. No testing has been done yet.

Oh and I also have a 3 year old daughter, Hannah, who is not FTT. She was almost 28lbs and 35.5" tall until a recent illness and hospitalization caused her to lose 3lbs. She's now 25lbs and has dropped from the 25-50th %ile to the 5th %ile. We will be doing a weight check in 3 months to ensure that her weight comes up.
Me [28] DH [32]

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September 11th, 2008, 10:44 AM
1shortmomma's Avatar Platinum Supermommy
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I'm Renee mom of 3 wonderful girls and an angel son.

Paige my middle daughter is my FTT child. She was 5lbs 5oz at birth (around 37 weeks). She has been in the less than 3rd percentile since birth. She is now 2.5 and weighs 16lbs 3oz. She was delayed in her milestones - rolled over around 10 months, sat around 11 months and waled around 18 months. Thanks to the early intervention program and LOTS of speech, PT and OT she is now almost on schedule after the Dr's thinking she would never walk or talk. She has been diagnosed with Microcephaly (her head and brain aren't growing). We don't really know what the future holds for her as she is already doing SOOOOO much more than was predicted for her. It is possible she will continue to progress and normal however; there is a possibility that she will stop progressing due to her brain not growing. She has had MANY MANY tests and they can't find anything wrong - other than her head & brain not growing.

My oldest DD Alexis is also less then 5%. She is not considered FTT though because she is REALLY short (less than 5% for height too). Her weight to height ratio is good and she has been following her own curve.

My youngest DD is Claire my chunky monkey. She is at 10-25% for weight despite being less than 5% for height.
~ Renee ~

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September 11th, 2008, 08:13 PM
Join Date: May 2004
Posts: 393
I'm Jenn - mommy to DD Kendall (13) and two boys Cade (6) and Colton (3). Cade is my FTT guy. He has several other issues going on besides FTT. He has PVL and a neuronal migrational defect in his brain, vision issues of Nystagmus, amblyopia and esetropia, seizure disorder, mild hemiplegic CP, apraxia, dyspraxia, PDD-NOS, sensory processing disorder, sleep apnea (better since having tonsils and adenoids out), asthma, reflux, immune problems (low IGM and low t cell count), and just delays in general. He has been late to meet all milestones. He first had issues w/ weight gain when he was much younger. He went through feeding clinic and direct feeding therapy and "graduated" from that in January 2005. He was doing great up until about 2 years ago when he just slowly started to not grow/gain well. We have seen several docs and had tons of tests done trying to figure everything out and the only things we have come up with is the reflux dx which was shock to both us and his GI, he takes Prevacid for it now though and his immune issues which he started IVIG for last week. We are at the point now that he will be getting a g tube and hoping it will help!

Mommy to Kendall, Cade and Colton
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