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Forum: Children with Vision, Hearing & Sensory Issues


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December 5th, 2010, 09:26 PM
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To start with I have a 7 month old that was born in April at 32 weeks. she was diagnosed with auditory neuropathy in her left ear 3 months ago. now she has fluid in her right ear. if the fluid is still there on dec 10th they will schedule her to have tubes in her ears. We are also now dealing with the issue of her left eye turning out. she is supposed to wear an eye patch 2 hours a day but everytime we put it on her she fights it - trying to take it off and screams until she falls asleep. Obviously because of that it is not helping her eye issue any - looking for ideas that might help.
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December 7th, 2010, 08:58 AM
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welcome to the board. So sorry you are dealing with patching woes. We have not had to patch as my little one had true strabismus (cross eye) neither worked better then the other so patching wouldnt help.
From being on the aphakic site (kids with cataracts when the lens is removed) Some of the tips they have for ones this young are patch with distraction. Go for a walk, Don't give in, go through 20 patches in 2 hours kinda thing, It will get easier, just hang in there

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December 7th, 2010, 01:19 PM
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we patched Carrie for a bit. we made it kid of fun. We played peek a boo with it. I'd hold it up to her eye and when she'd start to get fussy I'd take it away and say "peek a boo" all silly and fun... I'd do that 3 or 4 times and the last time the adhesive would be exposed and I'd stick it on her quickly. she got mad the first couple times that she'd been tricked, but when I took it off after the 2hours I said peek a boo like it'd been a long game and be silly. She seemed to like our "game" after a few times... don't know if it'll work for her, but it worked for us.

And I'd do it first thing in the am (she's a morning person, so it was when she was happiest) and that usually provided the least resistance

"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."
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December 8th, 2010, 10:16 PM
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i did patch nattie right before breakfast the other day and all was good until breakfast was over.
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