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Forum: Children with Vision, Hearing & Sensory Issues


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August 9th, 2012, 02:38 PM
short_n_swt's Avatar Mega Super Mommy
Join Date: Sep 2006
Location: Somewhere in Ontario
Posts: 2,611

My name is Becca, I've been apart of the justmommies boards since 2007, but never knew this board existed!
I have two children, dd is 5, and my ds is turning 4. We noticed about a year ago his behaviour seemed to get seemingly worse, problems at daycare (borderline expelled), and some problems with his sister, emotional problems etc. No matter our changes to try to address these issues, nothing improved. I finally went to the family doctor, who noticed he had what seemed to be a perforated ear drum and sent us to a specialist (ENT). (The thoughts on the behaviour was lack of hearing).
The ENT booked a surgery date to try and perform a small patch on the hole, however once ds was under the anesthesia, the ENT had seen he actually didn't really have much of an ear drum, and what was there was actually deflated. We were then again referred to Sick Kids Hospital in Toronto. We have another surgery booked for the fall, where they will place a small drainage hole in the ear canal, placing a t-shaped tube and allow the ear to drain into the tube, in hopes of the ear drum rising from a pressure change.

I was a "ear tube baby", had lots of tubes in and out and have something similar to what my son has with the collapsed ear drum. However this particular surgery is new to Ontario, and performed more in Montreal.

Just looking for some support from other moms who may have or are going through similar situations where their little ones are going through some time of surgery. Would be nice to have someone to share the aches of watching their child go through surgeries as well.

Thanks in advance!

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October 1st, 2012, 02:06 PM
Adventuremom's Avatar Leah
Join Date: Sep 2012
Location: Western NY
Posts: 1,156
I hope your son is doing well, Becca. I have a five year old who was born with a congenital hearing loss and also has had 4 sets of tubes placed (the last set was a set of "long term" tubes). He has a few other medical problems as well (11 sedated procedures and surgeries to date).

Surgery is always so hard on the parents, but the tubes can be a real help - our son drops into the profound range with fluid in his ears, and is moderately severe to severe when his ears are clear - so the tubes allow his hearing aids to work properly.

Hugs to yoU!
Leah, Mom to Matthew (12/22/05) and Nolan (08/27/07)

My chart: My Ovulation Chart
September 27, 2012: 5 weeks, 4 days. November 20, 2012: Ruptured ectopic.

My articles: http://leahlefler.hubpages.com/
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