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trachea problems


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  #1  
January 4th, 2006, 07:08 PM
stephie1012's Avatar Platinum Supermommy
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my daughter is now 3months old and since she was born she made these noises like she was gasping for air, but she wasnt, and she snores very loudly, now it has gotten worse and the dr thinks her trachea is inflamed, he gave her predisolone an antiflamtory medicine to see if that helps...there is other things he said not to rule out, such as asthma, apnea, and he said since she has reflux that it might be from the acid coming up and landin on her vocal chrods causing tiny abrasions..im so confused if anyone knows anything about this or something similiar please let me know

stephanie
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  #2  
January 4th, 2006, 07:21 PM
LuckyGirlx4's Avatar Mega Super Mommy
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Quote:
my daughter is now 3months old and since she was born she made these noises like she was gasping for air, but she wasnt, and she snores very loudly, now it has gotten worse and the dr thinks her trachea is inflamed, he gave her predisolone an antiflamtory medicine to see if that helps...there is other things he said not to rule out, such as asthma, apnea, and he said since she has reflux that it might be from the acid coming up and landin on her vocal chrods causing tiny abrasions..im so confused if anyone knows anything about this or something similiar please let me know

stephanie[/b]

Hi Stephanie,
Welcome to the board. I have a lot of experience with both of those issues. With all due respect, your Ped. doesn't soune like he really knows anything about this stuff. #1 if he thinks your dd's trachea is inflamed, then he needs to be sending her to a pulminologist, same if he thinks she might have asthma. #2 If she does have reflux, and he believe it could be errosion from stomach acid, he should have prescribed her an antacide like Zantac, Tagament, Prilosec, etc. then referred you to a GI specialist. The GI specialist, pulminologist and even possibly an ENT can work together to find out exactly what is happening and the best way to treat your dd. They should be doing tests such as Upper GI, pH Study, laryngoscopy, and sleep study just to begin with if they thinks she may have any of hte problems your Dr. mentioned.
The noise your hearing from your daughter is called "stridor", and it can come from several different places. If she has reflux, it could be effecting her vocal chords- making them inflammed which effects the tone (laryngealmalacia), it could be from the trachea causing irritation/inflammation (in which the prednisone and other steriods and anti inflammatories would be appropriete to treat), or it could effect the stability causing trachealmalacia.
My daughter has had severe reflux since birth and has since suffered from trachealmalacia, laryngealmalacia, chronic lung disease (now resolved w/ surgery), and asthma among other things. It is very important that your daughter be seen by specialists in these matters. My advice to you is to call your Ped. first thing in the morning and get referrals for a GI Dr. and Pulminologist to start- they will know if she needs to see an ENT as well.
I hope I didn't come off as harsh, that's not my intention at all, I just want to make sure our kids are not over looked- it happens.

Please keep me posted on what happens and how your beautiful baby girl is doing
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  #3  
January 5th, 2006, 10:44 AM
stephie1012's Avatar Platinum Supermommy
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thank you sooooo much for ur reply, it wasnt harsh it was honest and thats what i needed to hear.....even though i have been crying my eyes out since i read it, im going to get a 2nd opinion, im in the process of trying to find a new DR as i type this...i tired to do some research on trachea malcia and from what i read its really rare,i dont get if its so rare why wouldnt he send her for testing? i just dont feel right about giving my daughter predisone if i dont have to! i have been on predisione alot of times for my asthma and it makes me feel like crap when i take it, do u know what causes this? i mean is it something i did while i was pregnant im so lost, and worried....any help is greatly appreciated...thanks

stephanie
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  #4  
January 5th, 2006, 07:29 PM
LuckyGirlx4's Avatar Mega Super Mommy
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thank you sooooo much for ur reply, it wasnt harsh it was honest and thats what i needed to hear.....even though i have been crying my eyes out since i read it, im going to get a 2nd opinion, im in the process of trying to find a new DR as i type this...i tired to do some research on trachea malcia and from what i read its really rare,i dont get if its so rare why wouldnt he send her for testing? i just dont feel right about giving my daughter predisone if i dont have to! i have been on predisione alot of times for my asthma and it makes me feel like crap when i take it, do u know what causes this? i mean is it something i did while i was pregnant im so lost, and worried....any help is greatly appreciated...thanks

stephanie[/b]

Well, trachealmalacia is more common in newborns than anyone else. Sometime newborns who have been ventilated a lot will get it because there is damage from intubation. Sometimes newborns with excessive reflux will get it when they aspirate a lot of stomach acid- though you would have other pulminary problems first before you notice trachealmalacia usually. There are other genetic syndromes and the like which may have trachealmalaica- but not that alone, so it doesn't sound like you need to worry about that either.
My daughter has a more rare type III treachealmalacia- which is acquired long after birth.

As far as reflux goes- it's extremely common in infants! Rarely, it is caused by a condition called pyloric stenosis which is the narrowing of the pyloris (bottome part of the stomach) causing excessive reflux starting in the first 2-3 weeks of life (what usually the first Upper GI rules out). Other than that, it's simply the baby taking thier time maturing thier digestive systems- and they outgrow it by 6-12 months usually.
My daughter has had severe GERD since birth, that seems to get worse as she grows seemingly due to her low muscle tone type of cerebral palsy

The bottome line is, as long as you didn't smoke, drink, use drugs, ride a bull, or scuba dive ( ) during pregnancy, you can be quite assured that you did NOTHING wrong! Things happen. As long as you can find a Ped. who knows a little something about pediatric medicine, your daughter should be fine. Sometimes I feel like if there is anyone who knows that things just "happen" it's me. There is absolutely no logical reason for my daughter to have most of the problems that she has except for simple dumb luck. You'll be okay. Please feel free to stop by to get advice, GIVE advice, or just get some support ANYTIME! And keep us posted on your daughter's progress!
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  #5  
January 9th, 2006, 06:29 PM
stephie1012's Avatar Platinum Supermommy
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kyleigh is going for xrays tomorrow and i have a referral for a pulminologist, she also has a slight case of rsv, how do they do xrays on a baby? someone told me they put them under but she has no clue

stephanie
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  #6  
January 10th, 2006, 08:10 AM
LuckyGirlx4's Avatar Mega Super Mommy
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kyleigh is going for xrays tomorrow and i have a referral for a pulminologist, she also has a slight case of rsv, how do they do xrays on a baby? someone told me they put them under but she has no clue

stephanie[/b]

Anika has had conscious sedation for all of her MRI's, CAT scans, etc. With x-rays, because they can take the pics so fast, they usually put her on a bed (when she was a baby) and put big blankets around her arms and legs- the I would be at her head talking ot her and stroking her head, etc. YOu want to avoid any kind ot sedation if you can help it- especially if she's having air way problems. I hope she gets over rsv soon!
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  #7  
January 10th, 2006, 10:11 AM
stephie1012's Avatar Platinum Supermommy
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so they most likely will let me in the room with her right? sorry for all the questions im just worried

stephanie
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  #8  
January 10th, 2006, 12:06 PM
LuckyGirlx4's Avatar Mega Super Mommy
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so they most likely will let me in the room with her right? sorry for all the questions im just worried

stephanie[/b]
No worries, that's what I'm here for

Yes, as long as you aren't pregnant, you can stay in the room with her- you wil just wear a big lead vest. This is the way it's always been at both of our Children's hospitals since Anika was born.
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  #9  
January 11th, 2006, 10:25 AM
stephie1012's Avatar Platinum Supermommy
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i took kyleigh last night i was allowed to go in the room with her, if they werent going to let me i told my SO we would go somewhere else. she hate the xrays cried her little eyes out the whole time! if she has to get more xrays we are going to take her to a childrens hospital the xray tech had to have all these people help her bc no one there has ever had to do the kneck xray of what the dr wanted on a baby so young! our appt for the pulminologist isnt until the 31st, im gunna wait until her DR gets the xrays and stuff and ask him if maybe we should find a dr who can take her sooner. do u know if this problem can get worse?


stephanie
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  #10  
January 11th, 2006, 12:17 PM
LuckyGirlx4's Avatar Mega Super Mommy
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Quote:
i took kyleigh last night i was allowed to go in the room with her, if they werent going to let me i told my SO we would go somewhere else. she hate the xrays cried her little eyes out the whole time! if she has to get more xrays we are going to take her to a childrens hospital the xray tech had to have all these people help her bc no one there has ever had to do the kneck xray of what the dr wanted on a baby so young! our appt for the pulminologist isnt until the 31st, im gunna wait until her DR gets the xrays and stuff and ask him if maybe we should find a dr who can take her sooner. do u know if this problem can get worse?


stephanie[/b]
Aww I'm sorry- yeah tests always stink! I am so suprised that they didn't have an xray tech with experience in babies @@. We've only gone to children's hospitals so that's all we've experienced. As far as her appt. on the 31st- if there is something extraordinary on the xray, the Dr. will call you and see you sooner- other wise the 31st is only about 2 weeks away- and it doesn't get worse that quickly. ((((((())))) continue to keep me posted and I"m of course always here to help with questions.
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