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Forum: 2013 Playroom


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  • 7 Post By MarylandMama

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May 11th, 2013, 07:58 PM
MarylandMama's Avatar Mega Super Mommy
Join Date: Dec 2012
Location: Maryland, near DC
Posts: 1,473
Just copied and pasted this from Rebecca's fb page for anyone who hasn't seen it! What great news for our DDC's miracle baby! So happy for them! Here it is:

Surgery went really well. They were able to discover so much about Jocelyn's anatomy. Only the tip if her liver was in the omphalocele so they were able to close it, make her a belly button and create a colostomy. They closed her bladder, so she now will just wear a diaper to keep her dry like a normal baby and we won't worry about her bladder and peeing until she's older. They discovered she has 2 appendixes that they can use later for reconstructive surgeries and 2 ureters on her left kidney. She has 1 ovary and fallopian tube and a small uterus. She has a chance she may be able to carry a pregnancy later in life. She has a lipomylomeningocele but they have determined it doesn't go into her abdomen at all and because she is moving her legs, they'll wait until she has problems to do anything. She has hip displacia because of the bladder extrophy and I don't know when they'll try to fix that but as a baby she isn't going to be walking so that will also be a ways off. The surgeons said she won't need anymore surgeries for awhile and now we just need to work on feeds, making stool and then oral feeds so she can come home.
I just can't believe what a huge relief everything has been after all the things they said could be wrong with her. She is proof that miracles do exist. It's so strange to be talking with the nurses about whether I want to nurse her or not and about how to put her diaper on and about when to buy a carseat after barely surviving winter with the belief my baby wouldn't survive.
I'm just so grateful for all the thoughts and prayers everyone has given for us. I know they are the reason we have such a miracle.
There is still a long journey ahead of us, but she is doing so well after her first surgery that I have such high hopes for her future.
Oh.... just because I thought it was cute, they made her a belly button too
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May 11th, 2013, 08:04 PM
navywifey2003's Avatar Home Birth Mama
Join Date: Dec 2007
Location: Clovis, CA
Posts: 37,585
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I was just coming to post this

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May 11th, 2013, 08:06 PM
dmreed32's Avatar Veteran
Join Date: Nov 2012
Posts: 435
Omg how crazy awesome is that
Mom to Easton 9/13/2005
Due June 22. 2013

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May 11th, 2013, 08:06 PM
MamaSkunk's Avatar Mega Super Mommy
Join Date: Oct 2012
Location: Minneapolis
Posts: 3,068
She really is such a tough little fighter. Definitely a miracle!

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May 11th, 2013, 11:01 PM
Mega Super Mommy
Join Date: Sep 2012
Location: Florida
Posts: 1,085
That is awesome news, so glad baby is doing good.
-Hey, it's Genesis

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May 11th, 2013, 11:20 PM
MrsLat's Avatar Mega Super Mommy
Join Date: Oct 2012
Posts: 4,134
So happy for her and baby Jocelyn. Wonderful news
JaxonJocelyn Gabriel Grayson and Scarlett

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May 12th, 2013, 12:55 PM
Super Mommy
Join Date: Sep 2012
Location: St. Paul MN
Posts: 773
That is really terrific news! And yeah, really cute that they made her a belly button. They did that for my niece, too!
Mommy to Isaac 8.1.07 Gabriel 7.2.09 and Samuel 6.15.13
Angel Babe 9-16-2012 5wks
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May 12th, 2013, 02:15 PM
QueenCrafty's Avatar Courtney
Join Date: May 2007
Location: North Carolina
Posts: 26,352
Great news!!

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