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Forum: 2013 Playroom


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December 3rd, 2013, 03:02 PM
JennBer's Avatar Super Mommy
Join Date: Mar 2011
Posts: 869
So I haven't really talked about it much on here, actually I guess I don't really post much but wanted to share with you guys and maybe see if ya'll could keep us in your thoughts. So RaeLynn has a problem with one leg and one arm. Just looking at her you would never see it, but she will barely use her right arm and when she does it is newborn type movements with no control whatsoever and even then she RARELY will lift it about shoulder level. With her leg when she is standing she rolls her foot and stands on the side of her foot most of the time and even when she doesn't do that she wont put her heel down she stands on the toes, and if you stand her in you lap you can feel that she does not actually put any weight on that foot she stands with all her weight on the other and if you try and get her to put weight on that foot her leg just folds under. Now I have been trying to get a doc to take me seriously and really look at both the leg and the arm since she was about a month old. The response has always been she is young it will correct itself, or its ok don't be such a worry wart(well maybe not those EXACT words but you get the point). Finally last month I got a doc to listen to me, about the arm anyways, he told me that I should call in ECI to start with and we would go from there. ECI brought in a Physical Therapist. Fast forward to today, the doc calls me and says he had a long talk with her PT yesterday and that between what he saw a month ago and what the PT saw last week they believe she needs to see a specialist. They think she has nerve damage in her arm and something bone related going on with her leg. So next week we have to drive to a specialist over 500 miles away(sometimes it really sucks to live where I live). Hopefully they will be able to do something for her. So I guess what I am saying is wish us luck and send us some good thoughts if you can. Have a great day ladies!

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December 3rd, 2013, 03:52 PM
ThaiSpice's Avatar Platinum Supermommy
Join Date: May 2009
Location: AR
Posts: 19,854
Oh wow...so glad they are finally taking it seriously! Hopefully it's something that can be corrected and/or minimized. Good luck with it all, and keep us posted!

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December 3rd, 2013, 04:01 PM
Missa_Mae's Avatar First Time Mommy!
Join Date: Jun 2012
Location: U.S.A.
Posts: 3,062
Thoughts and prayers that all is ok!
Oh, Sweet Child of Mine

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December 4th, 2013, 06:40 AM
Mega Super Mommy
Join Date: Jun 2011
Posts: 1,313
Good luck!
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December 4th, 2013, 08:18 AM
MaineBean's Avatar Mega Super Mommy
Join Date: Oct 2008
Location: Maine
Posts: 4,789
Isn't it amazing how accurate Mommy Spidey-Sense often is? Here's to hoping whatever they find is correctable somehow over time. Careful on your drive and keep us informed about how it all turns out!

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December 4th, 2013, 05:15 PM
JennBer's Avatar Super Mommy
Join Date: Mar 2011
Posts: 869
thanks ladies! I will update you when we know something. Her appointments are on Thursday so I will be traveling to my mom's on Wednesday and then will we drive in from there to her first appointment on Thursday morning and as soon as we are out of that one we go to her second one. At least the doc was able to find specialist near some family so I will have somewhere to stay and not have to spend money on travel AND hotel.

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December 5th, 2013, 05:19 PM
*Anya*'s Avatar Platinum Supermommy
Join Date: Jun 2008
Location: Bay Area. CA
Posts: 11,030
oh my, definitely will keep you in my thoughts. Keep us posted and good luck.
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December 5th, 2013, 06:43 PM
May 2013 Cohost
Join Date: Aug 2012
Posts: 3,638
Can I ask what specialist you are seeing? Are you seeing a pediatric neurologist?
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December 6th, 2013, 09:43 AM
JennBer's Avatar Super Mommy
Join Date: Mar 2011
Posts: 869
She will see 2 different docs one for her leg and one for her arm. Not sure exactly which docs but we will be going to Texas Scottish Rite Hospital. I do know that one doc will be an orthopedic and I believe the other is a neurologist.

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