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Update--Joey's DR appts

Forum: Recurrent Miscarriage and Pregnancy Loss


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January 16th, 2009, 02:55 PM
esparando para bebé's Avatar Proud Car Seat Technician
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We'll start with yesterdays peds appt. I got to the place (UCI) and spent 20 minutes finding a parking spot. Then I had to get the kids out, and get Joey in his sling with a mask on his face (I feel so bad because I have to use the sling to keep his arms pinned between me and him so he doesn't pull the mask off) and went to the doctors office. Of course the first thing I do is tell them that Joey is on Chemo and needs to be in isolation. It takes them 15 minutes to get us to an iso room, keeping in mind I told them this when I scheduled and when I called that morning to confirm and remind them he needed iso.

Then the doctor came in and I confronted him on ignoring the symptoms and not even suggesting a refferal for the scalp issue (a dermatologist would have figured this out months ago) and for not even ordering a chest x-ray with the breating concerns. He said, "LCH is something we read about in textbooks, you never actually see it" At which point I was picking my jaw up off the floor. I then asked him if he knew the stuff on his head was a sign/symptom of LCH and he said "yes, its something we learn about but never have to apply."

He basically just told me he KNEW about LCH, he KNEW the symtoms, and he IGNORED them! I am so LIVID. He then asked me to sign the forms so they could get his records and I refused telling him that his ignorance is what nearly killed my son and my children would never be in his office again, because he chose to ignore my sons symptoms and not even givew me the referal I asked for. Not to mention how long they ignored me and made me wait with Melanie's speech/ears...

Then todays Onc appt was amazing. First of all, they have 2 waiting rooms, and the patients in each one never cross paths. One is for kids that have no sign of illness and the other is for kids who have any sign of illness whether it be a runny nose, a cough, or something more. Then in the rooms they have a PS2 (in each exam room) snacks for the kids (they had Oreo's today), and toys brought in specifically for each child based on their age (toys are brought in as you are brought in, and you turn them in after so they can clean them).

They checked Joey's port and its doing good, all his incisions seem to be healing nicely. They gave me some stuff to numb him before his treatments and appointments (everytime he goes he will have some kind of poke in his port, either a blood draw, or a treatment). They weighed him and he's gained 3 of the 4 lbs he lost (when the mass was bigger he was barely eating because he would choke on his food). He's a bit nauseated at times but the Zofran combats that easily. I can usually figure out if he's not feeling good based on his eating, but he's throw up 2 tmes sice we got home from CHOC. All in all he seems to be good, though more tired and crabby.

Next treatment is Monday at 1 PM[/b]

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Proud former foster parent to a teen. Waiting on our next call. Proud Aunt to 22.
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January 16th, 2009, 02:59 PM
plan4fate's Avatar I may bend, but not break
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That Dr that Traci was seeing was a J erk.

But that Oncology place sounds amazing! It's about time that people start understanding that kids need to be kids, even when they're sick!

Glad all went well.
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January 16th, 2009, 03:52 PM
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Glad all is well w/Traci and Joey. I agree w/Ashley's assessment of the dr.
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