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new here and just diagnosed with systemic lupus

Forum: Autoimmune Diseases and Disorders


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October 10th, 2008, 09:26 AM
M!che!!e's Avatar Platinum Supermommy
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Location: NYC born and raised. Now stationed in Savannah, Ga HAAF!
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i just found out i have systemic lupus after a positive ana titer that was also very high. i am also almost 7 weeks pregnant. the only reason i had the ana test done was because i had a subchorionic hemorrhage last pregnancy and i wanted to make sure i didn't have one again this pregnancy so i requested the clotting disorder assay.

my ob and nurse confirmed the diagnosis this morning even though they are awaiting my lupus anticoagulant, anti smith antibody, ig A, IgM and ant DNA tests. i am just in schock. i am also glad i fought to go to a high risk ob this pregnancy because now i definitely need one.

i was wondering if anyone had any advice for me, i don't know what to expect for treatment at this point, especially since i am pregnant. i do have to say i have had unexplained medical issues through the years that my idiot gp diagnosed as chronic depression as he threw rx antidepressants at me (which never made a difference) . knowing what i know now, it must have been a lupus attacks all those times.

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October 23rd, 2008, 02:29 PM
Becca's_Mommy's Avatar Becca's Mommy
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Location: Oklahoma City, Oklahoma
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I am sorry to hear about your dx, but I am glad you found answers to your problems. I do not have lupus, but there are several girls in our group who do. Its a little quiet around here. I hope someone can answer your questions! My name is Sara, and I am the host of this board, I've been a little MIA lately, but I hope to get know you and that you get some help with your questions.

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October 28th, 2008, 09:16 AM
Mega Super Mommy
Join Date: Mar 2007
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Hello, I am Keri and I have been slacking around here recently, but hope to get back into the swing.

I do not have Lupus, I ahve Rheumatiod Arthritis, but I do know how you are feeling. I was diagnosed with RA when I was 8 weeks pregnant with my first daughter. I had had symptoms for years, but they always had another "rason" for each individual issue instead of looking at them as a whole. It was crushing...here we were starting a family and then everything changed with one appointment with a Rheumatologist. There are a lot of emotions involved with a diagnosis, add a pregnancy on top of that and you emotions are everywhere! Hopefully someone here can help you with the lupus questions and support. Let me know if you need to talk, I am on JM every single day...probably too mcuh really....and if you PM me I will see it pretty quickly.


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February 7th, 2009, 05:49 PM
broxi3781's Avatar Mega Super Mommy
Join Date: Dec 2008
Location: belfast, northern ireland
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I was diagnosed with Lupus when i was 12 weeks pregnant with my son. I had been diagnosed with apa before after 6 miscarriages consequetively and so used clexane a blood thinner in pg. I also had all sorts of other diagnoses before and am sure the vast majority of it was really lupus now.
It was really worrying, but in fact the lupus was milder in pregnancy, and i did not recieve any traetment other than the clexane which i was on with my previous pg as well.
I did have some pretty bad kidney complications when pg with my older son (4) but this was before lupus diagnoses, this last pregnancy went pretty well. All I can really suggest is to do your best to look after your health in general, and hopefully your lupus will lighten up a bit with pregnancy.
I dont post here often, I'm usually at the Attachment Parenting board, but your welcome to pm me if you want someone to talk to.
All the best.
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January 22nd, 2010, 05:27 PM
Mommy2B&R's Avatar Mega Super Mommy
Join Date: Jun 2005
Location: Green Bay, WI
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I was also just diagnosed with Systemic lupus. I'm awaiting my first appt with my rheumy (Feb 1st) but was diagnosed based solely on an ANA test of 640:1. I'm not pregnant, but I have 2 healthy children. Just wanted to let u know that I'm going through a lot of the same things you are... and am here for an ear, or a shoulder, or whatever you need. You can PM me anytime.

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March 14th, 2010, 11:52 PM
Celena's Avatar Proud JM hostess
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So far I've heard and read that ALLOT of women get diagnosed by their RE's or when they're in the early stages of pregnancy... It just baffles me how rheumatologists and GP's miss this when there's so many signs pointing to it.

How are you hanling your lupus now that you're no longer pregnant, have you noticed it flaring more now that you're not or was it more prevelant while pregnant?
07/30/[email protected] 03.23.10 08/21/[email protected] EDD 04.21.10 02/08/[email protected] EDD 09.17.10
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