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Lupus and memory

Forum: Autoimmune Diseases and Disorders


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July 5th, 2009, 01:21 PM
broxi3781's Avatar Mega Super Mommy
Join Date: Dec 2008
Location: belfast, northern ireland
Posts: 1,563
Can lupus affect your memory?
I've always had a near photographic memory but lately have been having some trouble with words. Such as the other day my husband asked where something was and I replied"Right over there, on the stereo" he looked at me funny as we dont have a stereo, and havent in years, and I almsot snapped the stereo, the thing with the fish in it before realising thats an aquarium, not a stereo.
Usually its just a word I know but cant think of. I did have some trouble with words after a head injury about 7 years ago though, dont know if that could have flared back up, or if this has naything to do with lupus and headaches.
Any help appreciated its quite embarrassing.
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July 5th, 2009, 08:06 PM
amberjolie's Avatar Super Mommy
Join Date: Nov 2006
Location: Ontario
Posts: 884
Hi! I was diagnosed with CREST scleroderma, not lupus, so I don't know specifically, but I've had a brain fog for literally years. I don't know how much if it is due to fatigue (which would be the case with any auto-immune disease), or how much is due to having been pregnant (I found the preggo-brain didn't seem to go away for me). But I can totally relate to having word-retrieval problems, and once calling something the wrong thing! I'm always searching frantically in my brain for words that should be very simple and straightforward. I have no idea if there's anything that can be done, though, to help. But you're not alone!

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July 6th, 2009, 11:20 AM
broxi3781's Avatar Mega Super Mommy
Join Date: Dec 2008
Location: belfast, northern ireland
Posts: 1,563
thanks for the reply. It isnt always but comes and goes and may be related to fatigue, which is pretty normal with 2 young children and severe anemia, even without auto immune disease I imagine. the only part of my memory that really seems affected is words and sometimes spelling, but not always. I am really good at scrabble actually, but dont play when foggy, but the word thing is quite frustrating, i know exactly what I mean, i can visualise the thing in my head, I just cant remember what its called.
Well at least i can take some comfort in that others have had it too, I'm just glad it isnt early alzheimers!
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July 7th, 2009, 08:19 AM
M!che!!e's Avatar Platinum Supermommy
Join Date: Jul 2005
Location: NYC born and raised. Now stationed in Savannah, Ga HAAF!
Posts: 12,264
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i have fibromyalgia as a complement syndrome to my lupus and i know the fibro affects my memory. my rheumy calls it the "fibro fog"

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February 15th, 2010, 11:56 AM
Sacred Silence's Avatar Mega Super Mommy
Join Date: Jun 2009
Posts: 4,070
I have lupus too.. and yes words and even motor skills get misplaced in my brain! Very frustrating.
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