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How accurate are blood tests for celiac?

Forum: Autoimmune Diseases and Disorders


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December 3rd, 2010, 08:05 AM
divamomma's Avatar Veteran
Join Date: Jun 2008
Location: Canada
Posts: 194
I recently took my daughter to the dr, concerned with ongoing exhaustion, whiny behavior and constant hunger. She came back positive for celiac (Anti TTG IgA level was 42) We are now waiting for a referral to a specialist for a biopsy to confirm the diagnosis. How likely is the biopsy to show damage? Is the blood test fairly accurate?? So confused. Hate waiting for answers. Thanks so much.
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December 7th, 2010, 04:04 PM
IneedCoffee's Avatar Platinum Supermommy
Join Date: Oct 2007
Posts: 10,195
The blood test (based on one doctor) is all you need. Another doctor said the opposite. It is so hard to figure out sometimes.. especially when medical professionals cannot agree.

I did not get the biopsy. I became pregnant before they could do it. So instead, I went for a second opinion blood test, and allergy testing. The second opinion blood test was positive as well.. and the food allergy testing showed that I was allergic to wheat/rye/yeast/barley/etc.... all the gluten foods + more.

I am not saying not to do the biopsy, but if she tested positive for it.. and has the food allergies (or sensitivity to the foods) then your best bet is the gluten free diet.

I was told I was allergic to wheat/rye/etc as a child, and had I cut those from my diet, I wouldn't be Celliac today. Celiac is a disease that comes on after being exposed to gluten if you are allergic or sensitive to it and damages your intestines..yada yada.

Sorry so long... I just strongly disagree to subjecting someone to an intestinal biopsy if a follow up blood/allergy testing can confirm the problem.

Best of luck! I hope you get answers!
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December 17th, 2010, 02:24 PM
Celena's Avatar Proud JM hostess
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A really wonderful lady I know had bloodwork and biopsy, she modified her diet and has controlled it ever since.

There's an elimination diet book written by a doctor that she had used, said it was a God send.
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January 4th, 2011, 05:50 PM
LovingMyBoys's Avatar Mom of 3 boys
Join Date: Jan 2009
Posts: 2,858
You should get the biopsy done for the sake of seeing how much damage has been done already. Then they can compare down the track after your daughter has been on a GF diet to make sure things are healing up properly From what I have read the chances of a false positive blood test are slim, so it is likely that she does have it.

GL and thoughts coming your way. I have only recently been diagnosed with CD myself and am about to have my biopsies etc done now too.

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May 21st, 2011, 06:03 AM
Join Date: May 2011
Posts: 13
I have Celiac as well. Got pregnant before I could get the biopsy done. They said as long as there is a positive test, I'm considered "positive" In a year I think i might go ahead with the biopsy. I have probably had Celiac since I was 4 or 5 years old, and I'll be 30 this year, so I can imagine how much damage is there. I'm scared to death to go to the hospital to give birth, since many "profesionals" in my area don't take Celiac seriously, and they believe that ingesting gluten for a little while is ok. I get very sick from it, but I have the opposite reaction as most classic celiacs. It' such a confusing disease. Check out the GIG website, and the Center for Celiac Research. They have a lot of good information on their websites.
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