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Starting Plaquenil, any advice?

Forum: Autoimmune Diseases and Disorders


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December 28th, 2010, 03:25 PM
Racine's Avatar Mega Super Mommy
Join Date: Aug 2009
Location: The Mitten
Posts: 2,143
So my 9 month old decided to wean himself a little earlier than planned and since that was the one thing we were waiting on to start treatment for my lupus, I have my prescription for Plaquenil patiently waiting in my medicine cabinet. Before I start taking it, I am wondering if anyone who has been on it has any tips or personal experiences with the drug they would like to share. My doctor said to expect a little queasiness, but nothing awful.

What have your experiences been?

Thank you, Meganpixel, for my awesome siggy!

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December 28th, 2010, 05:08 PM
EmG EmG is offline
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Join Date: Aug 2010
Location: Reno, NV
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I had no side effects at all from the plaquenil. It really helped with the inflammation in the long run. I have a sister, however, who had digestive issues the whole time she was on it and hated it. The tough thing about drugs is everyone reacts differently. I hope that you get no side effects! But if you do, remember that a lot of times they will go away within a week or two as your body adjusts. Good luck!
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January 1st, 2011, 10:03 AM
amberjolie's Avatar Super Mommy
Join Date: Nov 2006
Location: Ontario
Posts: 884

I was on plaquenil for about 1/2 a year, and didn't experience any side effects from it (except I thought a skin rash may have been a result of it, but it turns out it's just from the Sjogren's itself), but I found in my case it didn't do anything for the fatigue or the joint pain.

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January 13th, 2011, 09:14 PM
Mom2M&S's Avatar Mega Super Mommy
Join Date: Jun 2009
Posts: 3,483
I was on plaquneil for about 6 months a few years ago. It helped with my inflammation tremendously and I had no major side effects.

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January 14th, 2011, 08:59 AM
erjo's Avatar Veteran
Join Date: Jan 2011
Posts: 354
I've taken Plaquenil. My doctor said I could take it all at once at bedtime, which is what I did, because for whatever reason it made me tired. My rheumy said that was fairly unusual, but I didn't mind. I slept BEAUTIFULLY when I was on that stuff.

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April 13th, 2011, 04:57 PM
MauMama's Avatar formerly La_Sirena
Join Date: Apr 2011
Location: Aotearoa
Posts: 317
I had quite a bad reaction to it. It gave me horrid diarrhea and constant vomiting. I had to get IV fluids at one stage. Apparently some gastrointestinal aggravation is common but the extent of mine was unexpected.

Jen + Matt
Parents to Sophie, the Wondergirl
Asperger's Syndrome
Joint Hypermobility
GERD & Constipation

Angels Autum & Isla (2007)
+ 7 others (2002 - 2011)

Mama with arthritis & connective tissue disorder called TRaPS
I've been charting since Jan 16, 2001 and TTA since April 2007.
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April 25th, 2011, 08:06 PM
Celena's Avatar Proud JM hostess
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Can you ttc or be pregnant while on it?
07/30/[email protected] 03.23.10 08/21/[email protected] EDD 04.21.10 02/08/[email protected] EDD 09.17.10
01/07/[email protected] 6wks3ds EDD 08.28.2011 7/ /11 @6wks5ds EDD 02.27.12

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August 30th, 2011, 09:16 AM
Join Date: Aug 2011
Posts: 1
@ Celena - I actually had to go on plaquenil for the first time when I was pregnant because my autoimmune disease was attacking the placenta. I had a ton of bizarre symptoms (ex: deep muscle itching, extreme nausea and vomiting) but it was hard to tell if was the plaquenil, the hormones I had to take, or the pregnancy. Overall, the plaquenil allowed me to have a beautiful healthy baby girl and I only had to take it for a few months of my pregnancy.

Now that she's 15 months I'm debating starting taking it again. I have vitiligo (skin pigment autoimmune), fibromyalgia (only since post-partum), and another autoimmune disease that is undiagnosed for now other than possible lupus.

I'm also debating if I want to attempt to get pregnant again or if it's just too much. Any input?
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September 1st, 2011, 05:33 PM
bookworm16_2000's Avatar Mom to Allison and JR
Join Date: Jun 2009
Location: Arizona
Posts: 3,263
I took Plaquenil for 18 months for my rheumatoid arthritis. It seemed to help my inflamation. My MFM, OB, and rheumatologist said I could take it while pregnant but I chose not to.

Thanks to Claire1979 for the terrific siggy!

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