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Forum: Autoimmune Diseases and Disorders

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  #1  
June 26th, 2011, 09:12 PM
Celena's Avatar Proud JM hostess
Join Date: Jul 2009
Location: @ JM if I'm not at work
Posts: 5,209
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I'm happy to see we have active members, it's been a quiet bord for so long...

Hope that we can grow into a tight group of support for one another, if anyone would like to have a chat weekly we can get a spot and have a time where we can talk in real time via JM's chat rooms
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  #2  
June 26th, 2011, 11:16 PM
MauMama's Avatar formerly La_Sirena
Join Date: Apr 2011
Location: Aotearoa
Posts: 317
I'd like to get more active on the boards. I'm so tired lately that my mind just blaahs and I forget about things.

I'm Jen, 30, mum to Sophie (recently diagnosed with Asperger's Syndrome, anxiety and some sensory issues) and married to Matt (also diagnosed with AS).

I've had the autoimmune thing for a while now but always just shrugged it off. I was always the sicker of the two (my brother) and if someone got sick I was always worse and with complications (like pneumonia).

It wasn't until I began having miscarriages that things started seeming off. I've had just about every test on the planet and nothing is ever abnormal. I will have a blood test, be sitting in the office with a huge inflamed joint and the dr will tell me, nope -- nothing is elevated!

Soph started developing fevers as a baby and I started to notice I was getting fevers too, along with the joint pain and it was with the loss of my twins in 07 that things came to a head.

I was on high doses of prednisone for a few years but am managing on 5mg at the moment. I'm actually having a good winter, not really sore at all most days, which, of course, makes me want to try and get pg again.

Nevermind what happens if I miscarry again or post-birth.

It seems never-ending for us.
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Jen + Matt
Parents to Sophie, the Wondergirl
Asperger's Syndrome
Joint Hypermobility
GERD & Constipation
Anxiety


Angels Autum & Isla (2007)
+ 7 others (2002 - 2011)

Mama with arthritis & connective tissue disorder called TRaPS
I've been charting since Jan 16, 2001 and TTA since April 2007.
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  #3  
June 28th, 2011, 01:27 PM
EmG EmG is offline
Super Mommy
Join Date: Aug 2010
Location: Reno, NV
Posts: 767
I am up for anything. It's nice to have people to talk to that understand what you are going through.
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  #4  
July 10th, 2011, 07:48 PM
Newbie
Join Date: Jul 2011
Posts: 3
hi im new to this group and im need some help info
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  #5  
July 12th, 2011, 03:59 PM
EmG EmG is offline
Super Mommy
Join Date: Aug 2010
Location: Reno, NV
Posts: 767
Hi! What kind of help/info are you looking for?
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