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Forum: Autoimmune Diseases and Disorders


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January 21st, 2012, 05:10 AM
HippieLove's Avatar Modern Day Brady Bunch
Join Date: Mar 2007
Location: Down Under
Posts: 21,233
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I had noo idea there was a forum for this! I was diagnosed with RA after having an attack that landed me in hospital in October, I also tested positive for Lupus but being a sensitive test as it is, my doctor said it takes months to confirm diagnosis. BUT I found out I was pregnant in November.

My doctors treating me as if I do have Lupus just incase, so i will have extra monitoring in the 2nd trimester etc. I recently had a petichae rash on my arm, quite large and he did a platelet level count (last week) so I'm waiting to hear back on the results.

I'm so glad to see this forum, I feel so alone because I don't know ANYONE who has these conditions (I also have PCOS).

Oh my name is Emma

♥ Isla Rae Due August 28th

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January 22nd, 2012, 09:59 AM
~.Sally.~'s Avatar Platinum Supermommy
Join Date: Jan 2006
Location: UK
Posts: 7,822
It is nice to have this board here, I just need to get more time to pop by.
Don't feel alone there are others out there to help and give you support. I have Crohns disease.
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January 22nd, 2012, 11:50 AM
EmG EmG is offline
Super Mommy
Join Date: Aug 2010
Location: Reno, NV
Posts: 767
Congrats on your pregnancy! I have lupus. I am in school right now, so I don't get on as much as I'd like to. It's good that you will have extra monitoring just in case something creeps up.
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January 29th, 2012, 11:20 PM
MauMama's Avatar formerly La_Sirena
Join Date: Apr 2011
Location: Aotearoa
Posts: 317
Hi Emma!

I'm Jen. I also have PCOS and had suspected Lupus for quite a while. I am ANA- though, so we kept pushing for a diagnosis. I have gone from RA to Lupus to Still's Disease back to Lupus and finally I was diagnosed with a genetic disease called Familial Mediterranean Fever, but it got moved to TRaPS.

I'm so glad you're getting extra monitoring.

My Rheum said he feels PCOS is an inflammatory condition so I thought it was interesting to see so many other 'autoimmune' mothers also having PCOS.

I hope you have a wonderful and complication free pregnancy.

Jen + Matt
Parents to Sophie, the Wondergirl
Asperger's Syndrome
Joint Hypermobility
GERD & Constipation

Angels Autum & Isla (2007)
+ 7 others (2002 - 2011)

Mama with arthritis & connective tissue disorder called TRaPS
I've been charting since Jan 16, 2001 and TTA since April 2007.
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