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Lupus of the skin??

Forum: Autoimmune Diseases and Disorders


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June 2nd, 2007, 08:11 PM
kjomomma's Avatar Mega Super Mommy
Join Date: Oct 2004
Location: Somerset, KY
Posts: 1,262
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i know this forum says that it is for systemic lupus but I was wondering if there was anyone here that is farmilar or has lupus of the skin?? I was told yesterday that this is a possible diagnosis for me. I have to have a biopsy (again) to confirm it but I was wanting to chat with someone with this disease in the meantime. thanks in advance
Wife to Josh(30)
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And Rayanna (2)
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June 2nd, 2007, 10:35 PM
Colee's Avatar Platinum Supermommy
Join Date: Apr 2005
Location: Northeastern Ohio
Posts: 16,731
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Hi Kelly,welcome to our little group This forum is for all auto immune disorders...not just the ones listed above. So please feel free to post...there are a couple ladies here with Lupus,they may be able to help you more.

Anyhow...I'm Nichole. Mommy to Emily 5 and Ryan 2. I have Ulcerative Colitis and Multiple Sclerosis...and a bunch of other un confirmed health issues

This is a great support forum,glad you joined us
Nichole,Mommy to Emily and Ryan
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June 4th, 2007, 09:17 AM
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Hi Kelly and welcome! I'm Janetta from Texas. Mom to Austin and Emily.

I have systemic Lupus, not discoid Lupus, so I can't help you a whole lot. But I just wanted to let you know we are all here for you if you need to chat with someone. Autoimmune disease are so similar and have so many similar charateristics, and I think the two types of Lupus have *some* of the similar characteristics.

Feel free to PM me if you like.

Take care and feel free to post any questions you may have here. Looking forward to getting to know you!
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June 6th, 2007, 12:54 AM
Mega Super Mommy
Join Date: Sep 2005
Posts: 4,930
My AI disease is celiac sprue and Lupus is often together with it. I was getting worried awhile back thinking I had Lupus because of skin reactions. Turns out I am instead allergic to the sun, so are other family members. Its called PMLE and it is an auto-immune reaction to UV rays. If I sunscreen it doesn't happen. My entire body is AI so why not to the sun.
Married 7 years to my wonderful Dh

Mommy to 6 year old Emily and 3 year old Lindsey!

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