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Brain Atrophy?

Forum: Preemies/NICU


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April 7th, 2009, 05:22 AM
Chatterbox's Avatar Mega Super Mommy
Join Date: Nov 2006
Location: TX
Posts: 3,870
Any information or experiences?

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April 7th, 2009, 08:53 AM
Bluebayou's Avatar Mega Super Mommy
Join Date: Apr 2008
Location: Toronto, Ontario
Posts: 2,388
No I am sorry I hope everything is ok!

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April 7th, 2009, 09:10 AM
SarahBethsMommy's Avatar Mega Super Mommy
Join Date: Nov 2007
Posts: 4,847
I'm sorry I don't have any personal experience.

I can tell you that I know a few moms whose children have cerebellum atrophy and their kids are doing great. They required therapies and such, but then most preemies do at some point. As I understand it, it can cause many of the same problems later as brain bleeds can. It can also cause little to no problems. It all depends on where the issue is, and your child.

I'll be praying for you and Cayden as you learn more!!

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April 7th, 2009, 09:36 AM
quietsong's Avatar Just Another Slacker Mom
Join Date: Aug 2006
Location: Missouri
Posts: 42,367
Oh hon, huge huge hugs to you!! One of the worst feelings in the world is being told your child had an abnormal MRI. Danny's high risk for restricted brain grown, and has had abnormal MRIs including enlarged ventricles, a possible "pocket" or empty spot, and calcifications ... not exactly brain atrophy, but definitely with similar concerns. One doctor told us he would "most likely" have seizure disorders, learning disorders, and moderate to severe cerebral palsy. (How's that for an optimistic doc?)

The beautiful thing is that a baby's brain is extremely adaptable. Atrophies, damage, etc can result in something...and on the other hand, other parts of the brain may pick up the slack and it could result in nothing. Danny has just hit one year adjusted age and lives to prove doctors wrong. He has never had a seizure and has absolutely no signs of cerebral palsy. It only took him a couple weeks after learning to crawl before he could scale the stairs with no trouble; he has recently been showing an ability to problem solve that his PT is thrilled with. He's still definitely delayed above and beyond his prematurity, and we can't rule out higher skill aphasias or disabilities, but compared to what was "supposed" to happen with the degree of brain impact his virus had, Danny is a miracle.

I'm praying for you guys. If you ever want to talk, my PM box is always open; I think the worst part of anything neurological is the not knowing, the constantly wondering when the shoe is going to drop. I really hope that Cayden is his own little miracle and doesn't let anything stop him!

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April 7th, 2009, 10:21 AM
Platinum Supermommy
Join Date: Dec 2006
Location: Pacific NW
Posts: 13,880
No experience but sending lots of T&P!
~Beth in Seattle

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April 7th, 2009, 05:03 PM
Platinum Supermommy
Join Date: Jun 2008
Location: New Jersey
Posts: 8,299
Oh Tami, Im so sorry. Ive never even heard of this, but Im sure its not good. Like I read is some of the girls' posts, it can be worked with, so with that said, please maintain your hope and faith. Your baby has done so well thus far, he's so strong. He can only get better. Hugs!
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May 13th, 2009, 08:04 AM
MLM's Avatar
MLM MLM is offline
Join Date: May 2009
Posts: 109
Hi There

I'm so sorry to hear your news. I thought I would share something similiar that happened to me. I'm new to the thread and I thought I would give you my experience. I had my twins at 27weeks 5 days. They're 2 years old now. Tyler (twin A) had an IVH bleed of 3 and 4. (the worst being 4) his bleed wasn't even on in the ventricles it was on the brain. John (twin B) had bleeds of 2 and 3. (in the ventricles) I thought we would have problems and worked really hard with them socially. Anyways they're fine to date. No issues with learning yet. They were delayed with motor skills.

Anyways in sick kids I always tried to keep in mind that the brain is developing and that I enviroment helps alot and I'll keep your baby in my prayers.

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August 3rd, 2017, 08:56 AM
Join Date: Aug 2017
Posts: 1
Originally Posted by Chatterbox View Post
Any information or experiences?
Hi I just wondered if you had any updates? My son is 4.5, MRI just confirmed cerebellar atrophy.
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