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Joey update

Forum: Christian Parenting


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August 30th, 2010, 08:32 PM
docsmomma's Avatar Platinum Supermommy
Join Date: Apr 2005
Location: Anaheim, CA
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We got Joey's pre-transplant testing schedule today. Its a lot, but honestly not as bad as I thought it would be. This is his schedule, please say extra prayers for us on these days...

Wed Sept 1: 8 AM labs, 9 AM bone marrow biopsy under sedation

Wed Sept 8: EKG and Echocardiogram under sedation

Fri Sept 10: 9 AM IV Hydration, 11:30 Kidney test, 12:30 CT scan, 1:00 chest x-ray and bone age test all under sedation

Fri Sept 17: 9:30 AM Brian MRI under sedation

Tue Sept 21: results from all testing, review plan, consent signing, meet the team

Mon Sept 27: Admission, port removal and Hickman broviac placement in AM, conditioning chemo start in afternoon. This is day -10 (I think, I could be wrong)

Oct 7 (I think) Day 0 - new cells arrive and Joey recieves them.

Days +1 through +30 are when he is most susceptible and needs to engraft. And through Day +100 we will be at City of Hope, either inpatient or in campus housing

Also... some extra thoughts for us on these days:

Oct 20... Melanie turns 5 and I won't be able to be here.

Thanksgiving... again won't be here....

Christmas... our very first Christmas apart.

Ladies... I will be honest. I am TERRIFIED that this could be our last month together as a family. I am afraid I will leave City of Hope shattered without my Joey. I know the risks, I know there is a chance we will lose him. I know what we are doing is his best chance, but its also very very risky. I am trusting God, but that fear still is there... that need to create as many memories as possible.

Please pray that I find peace... I am falling apart.
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August 30th, 2010, 08:37 PM
~LaurenNoel~'s Avatar Platinum Supermommy
Join Date: Mar 2009
Location: Florida
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Bless his little heart. I will praying hard for him and your family.
///...........................Lauren, wife to Jay, mom to Wesley and Ruby


................ ...

Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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August 31st, 2010, 06:37 AM
esparando para bebé's Avatar Proud Car Seat Technician
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*hugs* Traci. As with all hospitalizations, you can call me any time of the day or night. I need to give you my mom's # too in case you need to talk tomorrow. I will be babysitting Des.

Thanks to Jaidynsmum for my siggy!
Proud former foster parent to a teen. Waiting on our next call. Proud Aunt to 22.
Proud mommy to 7 angels. Survivor of 4 failed adoptions (5 kids)
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August 31st, 2010, 11:54 AM
kellysheree's Avatar balls to the wall
Join Date: Dec 2009
Location: Shelbyville, Kentucky
Posts: 715
Lots and lots of prayers for you all. Stay strong....soon you will be home with Joey and he will be a lot better! Praying for you, Joey, your family and Joeys histio hero. Deep breath.

Woah- so I'm listening to K-Love online as I type this and "Better then a Hallelujah"by Amy Grant is on...."God loves a lullaby In a mothers tears in the dead of night Better than a Hallelujah sometimes.......We pour out our miseries
God just hears a melody Beautiful the mess we are The honest cries of breaking hearts Are better than a Hallelujah"

So let it out. Much love and many prayers sent.

**thanks brui77 for my AMAZING siggy**
VISIT MY BLOG: www.faithfullyeverafter.blogspot.com
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August 31st, 2010, 12:56 PM
NewportMamaBear's Avatar Platinum Supermommy
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Prayers for you and your family.
Thank you Zarziza for a beautiful siggy
Missing my dad 2/23/1961-11/1/2010
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August 31st, 2010, 06:09 PM
~InHisHands~'s Avatar Platinum Supermommy
Join Date: Sep 2007
Location: US - Alabama
Posts: 12,675
Praying for you...

A&A Art ~ My TTC Blog ~ My Pics

"Never confuse acceptance with approval. Without approving
all we do, Jesus accepts all who come to Him." ~
Rick Warren

CLICK HERE to read about my mission trip to Romania! CLICK HERE to see pics!
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August 31st, 2010, 08:28 PM
Mattiez's Avatar Mega Super Mommy
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Posts: 2,422
(((HUGS))) and prayers.
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September 1st, 2010, 06:40 AM
~~Katrina~~'s Avatar My other car is a TARDIS
Join Date: Aug 2007
Location: South Carolina
Posts: 12,817
Praying for you and your family.

Thanks Kristy (*Kiliki*) for the awesome siggy!!

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